Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Topamax - what's it like?
Tue, 05/09/2006 - 08:19Topic: Medication Issues
Hi
I am taking tegretol retard and keppra at the moment.
Yesterday when I saw my doctor, he has prescribed me to go on topamax and when on the full dosage, I can then come off the keppra gradually.
I dont know much about topamax.
My doctor said there are 3 types of side effects some people get when taking topamax:
1. tingling in hands and feet
2. weight loss
3. memory loss
Has anyone had any of these experiences with this drug?
Please let me know what this drug is like, I dont want to end up with memory loss and weight loss.
My doctor said that when people hear weight loss might happen they are delighted but it can be fatal if the drug is taken still even after noticing weight loss because you keep loosing the weight and is not good for you.
Any comments on this, please feel free.
I'm a bit anxious about taking it.
Many thanks in advance,
Quirky
Comments
Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Topamax - what's
Submitted by Jess 68 on Wed, 2007-02-21 - 12:29
Along with the Topamax I'm taking Trileptal 450mg three times a day. It has helped some until I get my period or I get a cold, then it goes downhill from there.
Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Topamax - wh
Submitted by quirky on Thu, 2007-02-22 - 08:17
ah yes, the monthly cycle we women have to put with :-)
I am fortunate that my period doesn't change things for me in that way at all. But when I'm not well, a bit under the weather like you say when you get a cold, I do have more auras than usual then.
hope it all gets better for you Jess,
do keep in touch
Quirky
Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Topamax - what's it
Submitted by quirky on Wed, 2007-02-21 - 08:33
Hi Jess68 I'm not on as much as yourself. I'm only taking 200mg a day along with 1200mg a day of tegretrol retard. I've been on Tegretol since I was 14,I'm 30 now. Tegretol on it's own is not enough to control my seizures. What about you? Are you taking anything else? Or is it just topamax? You are on a high dose of topamax so wouldn't surpise me if you were not on anything else.