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Topamax hallucinations

Wed, 06/01/2005 - 23:49
My son was just changed from Depakote to Topamax and we are still stirating up to his max dosage; we are in week 4. I researched the med when prescribed and didn't like what I saw, but since side effects MIGHT not happen with him and he was so upset with the depakote (hair loss, he's 15), I thought we'd try.I didn't let him read the list of side effects so he would not be influenced.He is seeing lines connecting everything together; he describes it as a special effects, like in a movie or photo when the film is rushed together.Is this something normal for this med or to be reported to the DR?Will it go away?(can you tell I'm new here ? :-) thanks for your help......)

Comments

RE: RE: RE: RE: Topamax (new to this help)

Submitted by txrhb1 on Wed, 2005-06-22 - 23:12

Hi Maive,

I am so sorry to hear you are having such problems.  I know how frightening it can be when you get the diagnosis.  It must be even more frightening when the doctor does not give you any information.  I'm not sure how the military hospitals work, but I would suggest that you go back to the doctor, "demand" more information.  If that doesn't get you what you need, I would ask to speak to a superior.  They have to report to someone.

There are a lot of places you can go on the internet to get information on epilepsy.  This forum is an excellent place to get the emotional support you need.  I know it has helped me just reading what others have gone through.  There are many wonderful people that offer support, advice, reference resources, and compassion.  You are not alone! 

I don't know what else I can offer to you, but am more than willing to talk to you and let you know that someone cares.

Barb

Hi Maive,

I am so sorry to hear you are having such problems.  I know how frightening it can be when you get the diagnosis.  It must be even more frightening when the doctor does not give you any information.  I'm not sure how the military hospitals work, but I would suggest that you go back to the doctor, "demand" more information.  If that doesn't get you what you need, I would ask to speak to a superior.  They have to report to someone.

There are a lot of places you can go on the internet to get information on epilepsy.  This forum is an excellent place to get the emotional support you need.  I know it has helped me just reading what others have gone through.  There are many wonderful people that offer support, advice, reference resources, and compassion.  You are not alone! 

I don't know what else I can offer to you, but am more than willing to talk to you and let you know that someone cares.

Barb

RE: RE: RE: RE: RE: Topamax (new to this help)

Submitted by maive on Thu, 2005-06-23 - 07:11
Thanks barb! I am trying to get to see a civilian doctor this week. One that specializes in epilepsy. maybe that way i will get some answers. The drugs dont' seem to help except to make me feel like i am half drunk or something. hopefully I will get some answers this week. Thanks anyway.

RE: RE: RE: RE: RE: RE: Topamax (new to this help)

Submitted by txrhb1 on Thu, 2005-06-23 - 17:37

Maive,

I'm glad to hear you are going to get in with a civilian doctor.  where do you live?  Do you know of one near you who specializes?

I know the feeling on the drugs.  It feels like nothing ever has before....my mind is numb half the time.

I hope you find answers, and if you need some emotional support, I'm here for you!

Barb

Maive,

I'm glad to hear you are going to get in with a civilian doctor.  where do you live?  Do you know of one near you who specializes?

I know the feeling on the drugs.  It feels like nothing ever has before....my mind is numb half the time.

I hope you find answers, and if you need some emotional support, I'm here for you!

Barb

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