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Topamax hallucinations

Wed, 06/01/2005 - 23:49
Topic: Medication Issues
My son was just changed from Depakote to Topamax and we are still stirating up to his max dosage; we are in week 4. I researched the med when prescribed and didn't like what I saw, but since side effects MIGHT not happen with him and he was so upset with the depakote (hair loss, he's 15), I thought we'd try.I didn't let him read the list of side effects so he would not be influenced.He is seeing lines connecting everything together; he describes it as a special effects, like in a movie or photo when the film is rushed together.Is this something normal for this med or to be reported to the DR?Will it go away?(can you tell I'm new here ? :-) thanks for your help......)

Comments

RE: RE: RE: RE: Topamax (new to this help)

Submitted by Dragonfly71 on Fri, 2005-08-26 - 11:54

Maive,

I also saw a military doctor for my epilepsy. If you are on Tricare, you, CA and I felt I was on a cattle line getting branded. I have had epilepsy as long as I can remember and I knew if a med wasn't working for me I would refuse it. They got mad cause they were trying to push their new drugs on me. Most of the meds are given to docs to encourage them to prescribe them. I just tell them that I know my own body. I am on disability and battle depression from time to time. Get that doctor attention and let him/her know whats going on. After all, you are intitled to 15 minutes of each visit.

Maive,

I also saw a military doctor for my epilepsy. If you are on Tricare, you, CA and I felt I was on a cattle line getting branded. I have had epilepsy as long as I can remember and I knew if a med wasn't working for me I would refuse it. They got mad cause they were trying to push their new drugs on me. Most of the meds are given to docs to encourage them to prescribe them. I just tell them that I know my own body. I am on disability and battle depression from time to time. Get that doctor attention and let him/her know whats going on. After all, you are intitled to 15 minutes of each visit.

RE: RE: RE: RE: RE: Topamax (new to this help)

Submitted by shellie on Sun, 2005-08-28 - 09:38

Celt...400mg?  Gosh, glad, very glad you aren't dead!!!   

I just finally got up to 50 mg (or whatever) a day...(was supposed to be there a month ago) but it made me the exact opposite of you...soooo sleepy.  I was sleeping about 18-19 hours a day.  I couldn't function.  I'm now trying to get to my prescribed dosage of 75 mg, but honestly, now that I'm stable, and kind of seizure free, I don't want to go through that again, but know I need to.  Uggh...and to think that some people "fake seizures..."

 

Were you really on 400 mg/whatever a day....you must have been a zombie!  Thank God you are alive!!!  I just figured that..that is 8 TIMES what I am taking and I'm not really a small girl.  WOW.  I just hope you are on something that makes you stable now.  I'm truly shocked!  I hope you are ok, and I REALLY hope you are seeing the right Doctor...I am really wondering if you are..seeing if you saw someone who put you on that much Topamax.  Was it an initial dosage (please say no) or was it a dose up?  Just curious.  Take care.

Celt...400mg?  Gosh, glad, very glad you aren't dead!!!   

I just finally got up to 50 mg (or whatever) a day...(was supposed to be there a month ago) but it made me the exact opposite of you...soooo sleepy.  I was sleeping about 18-19 hours a day.  I couldn't function.  I'm now trying to get to my prescribed dosage of 75 mg, but honestly, now that I'm stable, and kind of seizure free, I don't want to go through that again, but know I need to.  Uggh...and to think that some people "fake seizures..."

 

Were you really on 400 mg/whatever a day....you must have been a zombie!  Thank God you are alive!!!  I just figured that..that is 8 TIMES what I am taking and I'm not really a small girl.  WOW.  I just hope you are on something that makes you stable now.  I'm truly shocked!  I hope you are ok, and I REALLY hope you are seeing the right Doctor...I am really wondering if you are..seeing if you saw someone who put you on that much Topamax.  Was it an initial dosage (please say no) or was it a dose up?  Just curious.  Take care.

RE: Topamax hallucinations

Submitted by EHammarstrom on Mon, 2005-06-27 - 09:21
I dont know if your (or any) doctor told (tell us)everything. I would hope a (good) doctor would. I am not on this medication, right know I am on Lamictal. I was on dilantin but my doctor took me off it after my bone scan. For everyone who is having troble with the Topamax, I hope it does not affect your loved ones and they get over this.

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