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Nocturnal seizure... what is it?!
Tue, 07/24/2007 - 22:24Comments
Re: Nocturnal seizure... what is it?!
Submitted by saraibarai on Tue, 2009-07-07 - 02:15
Actually I just joined because I have nocturnal epilepsy and so that I can talk to other member with the same issue.
When I read your question, it was a total description of what goes on with me when I have a seizure during sleep. The only difference is I don't look control of my bladder and wet the bed, but the biting the tongue, the disoriented state of mind is totally what happens to me.
I have a neurologist that I am seeing and actually my epilepsy was inherited from my father's side of the family.
My brother and I both had these seizure when we were both infants, then quit having them when we were close to a year old. I'm the only one in my family that has had a seizure past the infant stage.
Last night/this morning I had a nocturnal seizure and I'm pregnant. The lack of sleep that usually comes with being pregnant is clashing with the sleep I need to remain seizure free.
Your doctor should be giving you tests like the EEG which will monitor your behavior while you're sleep deprived or asleep. Mine have always come back normal but just to be safe they want me to get as much sleep as I can.
I'm luckily on the lowest form of medication there is for epilepsy, Keppra. When my brother and I were babies though they had us on phenobarb (not sure how to spell).
But the Keppra works when taken everyday twice a day for me, so I hope you get something worked out with your doctor to where you won't have to worry about having another seizure and get it under control.
Best of luck!
Actually I just joined because I have nocturnal epilepsy and so that I can talk to other member with the same issue.
When I read your question, it was a total description of what goes on with me when I have a seizure during sleep. The only difference is I don't look control of my bladder and wet the bed, but the biting the tongue, the disoriented state of mind is totally what happens to me.
I have a neurologist that I am seeing and actually my epilepsy was inherited from my father's side of the family.
My brother and I both had these seizure when we were both infants, then quit having them when we were close to a year old. I'm the only one in my family that has had a seizure past the infant stage.
Last night/this morning I had a nocturnal seizure and I'm pregnant. The lack of sleep that usually comes with being pregnant is clashing with the sleep I need to remain seizure free.
Your doctor should be giving you tests like the EEG which will monitor your behavior while you're sleep deprived or asleep. Mine have always come back normal but just to be safe they want me to get as much sleep as I can.
I'm luckily on the lowest form of medication there is for epilepsy, Keppra. When my brother and I were babies though they had us on phenobarb (not sure how to spell).
But the Keppra works when taken everyday twice a day for me, so I hope you get something worked out with your doctor to where you won't have to worry about having another seizure and get it under control.
Best of luck!
Re: Nocturnal seizure... what is it?!
Submitted by spelcheckr333 on Thu, 2009-12-31 - 19:53
My name is Lindsey and I was diagnosed with epilepsy when I was 10. At first I had Grand Mal seizures during the day, and after a few years I was able to get them under control after going through about 6 different meds and combinations of them; When I was on Keppra for the three years of my high school career I was seizure free. But one day driving home I had an aura and pulled off the road in time before I had yet another partial seizure. It seemed that with each medication I switched to, I would eventually become immune to it somehow.
Once I started college in 2007 my sleep schedule and eating habits and everything changed (I wasn't sure if it was due to the meds). One night sometime that year I began having nocturnal seizures in addition to the partial day ones. However they were never of the same intensity or duration.
I still have seizures day and night (more often at night though). I never wet the bed or bite the insides of my mouth but they will sporadically wake me up.
Just my advice from what I've experienced, don't stay up too late, sleep in too late, and exercise as much as you can on a regular basis... a regular sleep schedule and relaxed muscles keep my nocturnal seizures to a minimum and help me get a good night's rest. Good luck!
My name is Lindsey and I was diagnosed with epilepsy when I was 10. At first I had Grand Mal seizures during the day, and after a few years I was able to get them under control after going through about 6 different meds and combinations of them; When I was on Keppra for the three years of my high school career I was seizure free. But one day driving home I had an aura and pulled off the road in time before I had yet another partial seizure. It seemed that with each medication I switched to, I would eventually become immune to it somehow.
Once I started college in 2007 my sleep schedule and eating habits and everything changed (I wasn't sure if it was due to the meds). One night sometime that year I began having nocturnal seizures in addition to the partial day ones. However they were never of the same intensity or duration.
I still have seizures day and night (more often at night though). I never wet the bed or bite the insides of my mouth but they will sporadically wake me up.
Just my advice from what I've experienced, don't stay up too late, sleep in too late, and exercise as much as you can on a regular basis... a regular sleep schedule and relaxed muscles keep my nocturnal seizures to a minimum and help me get a good night's rest. Good luck!
Re: Nocturnal seizure... what is it?!
Submitted by mdmura on Fri, 2008-04-18 - 18:59
Hi Alana,
This is my first time posting. Something similar happened to me twice this year out of the blue. Have you had another nocturnal episode like the one you had last year? What has your doctor said? Are you on any meds? My appt with the doctor is in a few days and I'm trying -to prepare myself. Thanks for any info.
--Melanie
Hi Alana,
This is my first time posting. Something similar happened to me twice this year out of the blue. Have you had another nocturnal episode like the one you had last year? What has your doctor said? Are you on any meds? My appt with the doctor is in a few days and I'm trying -to prepare myself. Thanks for any info.
--Melanie