Nocturnal seizure... what is it?!

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Hi all I am new to this forum, and just stumbled across it while trying to search for an explanation of something that happened to me. So my story is... I was on holiays, so was fairly tired after a flight from Australia to New York. I fell asleep around 1:00am and my boyfriend woke up to me at 2:00am having a seizure. Apparently i looked like i was being possessed (charming, i know!). Basically it wasnt jerky movements, but i just lost control of every body movement - i wet the bed, my face muscles had gone all droopy, I couldnt talk except to slur a little bit, and I couldnt sit up. I woke up to the ambulance guys, then within 5 minutes I realised where I was and was starting to be able to speak again and by the time i was in the emergency room, within maybe 20 mins, I was fully functional again. My MRI and CT scans came back totally clear and the neurologist said that it must have been a random seizure (ie he could see no reason for it except possibly exhaustion). My family has a long history of strokes but the doctors said this wasnt a stroke. Does anyone know if this sounds like a type of epilepsy?? If anyone could give me ANY info that would be great. Anyone with a similar story etc. Thank you so much in advance!! alana

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Have you ever been tested for

Submitted by Tamarafox88 on Fri, 2018-05-18 - 06:21

Have you ever been tested for any genetics issues? My husband and son sound like identical copies of all of your issues but no one knows whats wrong... I think my infant daughter may have nocturnal siezures too. I'm at a loss.... My family is an oddity...-Morticia

Re: Nocturnal seizure... what is it?!

Submitted by LaVerne on Sun, 2013-06-23 - 00:17

Hi, I'm LaVerne

As a child. I was in a abusive family. I was stabbed in the head when I was 6 months old. I don't know if this is what caused my seizures but, I have had seizures all my life that I can remember. at first, I did not know what it was. this thing that happened to me every night I slept. I am now 49 years old and about to by 50 in less that 30 days. I never knew why I couldn't remember things, or sometimes I stumble when I walk. i'm parrallized in my sleep, anytime I go to sleep. whoever now, it has happened when I was out on a date, and at a family member's house. I am very stressed. I started college, I work at night, and I have family problems. I'm scared a little. my doc put me on some meds. I fear I may forget to take my meds sometimes. At least I know now what the issue is and not the silly answer I was given when I was a little girl. My sister told me the devil was riding my back. A friend said I was being visited by demons. I am blessed to be alive and happy too.

Hi, I'm LaVerne

As a child. I was in a abusive family. I was stabbed in the head when I was 6 months old. I don't know if this is what caused my seizures but, I have had seizures all my life that I can remember. at first, I did not know what it was. this thing that happened to me every night I slept. I am now 49 years old and about to by 50 in less that 30 days. I never knew why I couldn't remember things, or sometimes I stumble when I walk. i'm parrallized in my sleep, anytime I go to sleep. whoever now, it has happened when I was out on a date, and at a family member's house. I am very stressed. I started college, I work at night, and I have family problems. I'm scared a little. my doc put me on some meds. I fear I may forget to take my meds sometimes. At least I know now what the issue is and not the silly answer I was given when I was a little girl. My sister told me the devil was riding my back. A friend said I was being visited by demons. I am blessed to be alive and happy too.

Re: Nocturnal seizure... what is it?!

Submitted by fruitedplain on Mon, 2010-05-03 - 21:15

I'm new to this also despite just turning 70 and I invite you all to the house for a dose of California medication (Sierra Nevada, made just up the river from here). We're in some club!

About four years ago I awoke to the sence there was smoke in the room. I was drenched with sweat and couldn't ably stand up. In the next half year, I had about 6 more episodes of diminishing serverity. None since.

In early Feb, 2010, I had a Grand Mal event, or so my wife and the Volunteer fire department tell me. I bit thru my lip and dislocated my shoulder. The fire chief called the Sheriff to restrain me as a precaution before giving aid.

I was transported to the local hospital, scanned, IV'd and diagnosed as having a Gran Mal Seizure. I have no memory of the event itself, I contacted my Primary Care MD who referred me to a Neurologist who tested me and my Medicare to the tune of about $20K for EEG and MRI... the MRI was done in Chico, CA in a palatial facility that made me wonder: "... this would be great for Bill Gates, but for little old me??????"

AND, the Neurologist warned me NOT TO DRIVE! California DMV was notified of my event and I have submitted the requisite reports, but I am awaiting the determination. Have you thought of living without driving in modern America? I'm on Keppra, have been a cooperative patient etc, and I hope CA DMV will trust me to get behind the wheel again.

I must also note that I am having big-time reactions (I think) to Keppra). Black depressions. Suicidal impulses that my MD's assistant interrogated me about as soon as I mentioned Keppra. I suspect this is common. Is it. fellow epileptics? BTW, an epileptic these days is anyone with more than one seizure event.

I have additional heath issues within the last two years (anemia mainly), but I have been an athletic horse for the last 25 years. Marathons, Senior Softball, weights etc. What-the-Medicare is going on?

Hang in, y'all. I'm trying to take this seriously, I mean the DMV part, it doesn't take much Googling to find case after case of epileptics who did indeed drive into a tree. These things happen like a lite switch, I'm told.

be safe & be well.

I'm new to this also despite just turning 70 and I invite you all to the house for a dose of California medication (Sierra Nevada, made just up the river from here). We're in some club! About four years ago I awoke to the sence there was smoke in the room. I was drenched with sweat and couldn't ably stand up. In the next half year, I had about 6 more episodes of diminishing serverity. None since. In early Feb, 2010, I had a Grand Mal event, or so my wife and the Volunteer fire department tell me. I bit thru my lip and dislocated my shoulder. The fire chief called the Sheriff to restrain me as a precaution before giving aid. I was transported to the local hospital, scanned, IV'd and diagnosed as having a Gran Mal Seizure.  I have no memory of the event itself, I contacted my Primary Care MD who referred me to a Neurologist who tested me and my Medicare to the tune of about $20K for EEG and MRI... the MRI was done in Chico, CA in a palatial facility that made me wonder: "... this would be great for Bill Gates, but for little old me??????" AND, the Neurologist warned me NOT TO DRIVE! California DMV was notified of my event and I have submitted the requisite reports, but I am awaiting the determination. Have you thought of living without driving in modern America? I'm on Keppra, have been a cooperative patient etc, and I hope CA DMV will trust me to get behind the wheel again.  I must also note that I am having big-time reactions (I think) to Keppra). Black depressions. Suicidal impulses that my MD's assistant interrogated me about as soon as I mentioned Keppra. I suspect this is common. Is it. fellow epileptics? BTW, an epileptic these days is anyone with more than one seizure event. I have additional heath issues within the last two years (anemia mainly), but I have been an athletic horse for the last 25 years. Marathons, Senior Softball, weights etc. What-the-Medicare is going on? Hang in, y'all. I'm trying to take this seriously, I mean the DMV part, it doesn't take much Googling to find case after case of epileptics who did indeed drive into a tree. These things happen like a lite switch, I'm told. be safe & be well.    