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Nocturnal seizure... what is it?!

Tue, 07/24/2007 - 22:24
Hi all I am new to this forum, and just stumbled across it while trying to search for an explanation of something that happened to me. So my story is... I was on holiays, so was fairly tired after a flight from Australia to New York. I fell asleep around 1:00am and my boyfriend woke up to me at 2:00am having a seizure. Apparently i looked like i was being possessed (charming, i know!). Basically it wasnt jerky movements, but i just lost control of every body movement - i wet the bed, my face muscles had gone all droopy, I couldnt talk except to slur a little bit, and I couldnt sit up. I woke up to the ambulance guys, then within 5 minutes I realised where I was and was starting to be able to speak again and by the time i was in the emergency room, within maybe 20 mins, I was fully functional again. My MRI and CT scans came back totally clear and the neurologist said that it must have been a random seizure (ie he could see no reason for it except possibly exhaustion). My family has a long history of strokes but the doctors said this wasnt a stroke. Does anyone know if this sounds like a type of epilepsy?? If anyone could give me ANY info that would be great. Anyone with a similar story etc. Thank you so much in advance!! alana

Comments

Re: Nocturnal seizure... what is it?!

Submitted by jderry on Thu, 2008-04-03 - 18:39
Nocturnal seizures /during a nap are the only seizures I have and I only get them weeks sometimes mounths apart.  But they hit me like a truck in clusters. And I do something to my eyes almost allways my right one like I've rubbed it hard or it gets stuck wide open and it dries out it hurts something awful for 1-2 days. No one has been able to help me yet. My lastest doc seems to think from what I do the day before or eat that a drop in blood sugar my be the cause so we've started working on that for a trigger. My last gap in having a sez was about 11 wks. So right now I'm cutting back on the carbs all sweets and making sure I eat something before going to bed, natural peanut butter seems to work. The doc told me to avoid dairy products, and all caffine. It's a pain but if that's my cause hellaua! 

Re: Nocturnal seizure... what is it?!

Submitted by BUS 374 on Mon, 2009-02-23 - 14:02

I have nocturnal seizures. My first one was on July 20 2004. I was vacationing in Virgina Beach when I had a seiuzre at 6am. I was rushed to the hospital across the street, but while I was there, nothing turned up.

I went back to vacationing until a week later. After my older complained about me making noises in the night, I was readmited to the hospital. For two days I was monitored and every night, I had about 3-4 seizures a night. They consisted of grunting in the throat, twitching of the arms and legs, and at the time, my eyes were fluttering and I was some mild muscle spasms.

After being on Tegratol for 4 1/2 years, my seizures are very well controlled (not sure if I have them anymore) but that's my story as far as nocturnal seizures.

 

BUS 374 Idling at 500 RPM Diagnosed at 16 with complex-partial; now simple-partial 

Love Computers, Gardening, Photography, Biking, Snorkeling and Scuba Diving

I have nocturnal seizures. My first one was on July 20 2004. I was vacationing in Virgina Beach when I had a seiuzre at 6am. I was rushed to the hospital across the street, but while I was there, nothing turned up.

I went back to vacationing until a week later. After my older complained about me making noises in the night, I was readmited to the hospital. For two days I was monitored and every night, I had about 3-4 seizures a night. They consisted of grunting in the throat, twitching of the arms and legs, and at the time, my eyes were fluttering and I was some mild muscle spasms.

After being on Tegratol for 4 1/2 years, my seizures are very well controlled (not sure if I have them anymore) but that's my story as far as nocturnal seizures.

 

BUS 374 Idling at 500 RPM Diagnosed at 16 with complex-partial; now simple-partial 

Love Computers, Gardening, Photography, Biking, Snorkeling and Scuba Diving

Re: Nocturnal seizure... what is it?!

Submitted by tonialpha on Mon, 2009-02-23 - 20:18

When I first started working in the field of EEG a Prof. said every living being has a seizure thresh hold.  One day a farmer came into the hospital to have an EEG.  He described what seemed to be a seizure.  He said he had to get his crops taken care of and hadn't slept for 2 days.  When he went to bed for a good rest he had a seizure!  The Neurologist said to the farmer that he had 2 sons that could help him next time.  The farmer as far as I know never came back.  The farmer hadn't had enough sleep, food, and hot weather. 

All humans have a seizure threshold!  loved that comment!  I worked in the field of Neurology for 15 years and will never forget that farmer who just simply overworked himself!

When I have done flying from Europe and layovers in London. I fortuantely live in the East Coast, while others have may have to travel another 5 hours to the West Coast! I have had seizure activity when I get home or on the plane.  I have my back-up medication when I am traveling.  My seizures go askew.  The airline staff have been very helpful along w/ the airport staff.  The medic-alert bracelet is helpful when you can not speak. 

I think I covered that from A - Z!

When I first started working in the field of EEG a Prof. said every living being has a seizure thresh hold.  One day a farmer came into the hospital to have an EEG.  He described what seemed to be a seizure.  He said he had to get his crops taken care of and hadn't slept for 2 days.  When he went to bed for a good rest he had a seizure!  The Neurologist said to the farmer that he had 2 sons that could help him next time.  The farmer as far as I know never came back.  The farmer hadn't had enough sleep, food, and hot weather. 

All humans have a seizure threshold!  loved that comment!  I worked in the field of Neurology for 15 years and will never forget that farmer who just simply overworked himself!

When I have done flying from Europe and layovers in London. I fortuantely live in the East Coast, while others have may have to travel another 5 hours to the West Coast! I have had seizure activity when I get home or on the plane.  I have my back-up medication when I am traveling.  My seizures go askew.  The airline staff have been very helpful along w/ the airport staff.  The medic-alert bracelet is helpful when you can not speak. 

I think I covered that from A - Z!

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