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Nocturnal seizure... what is it?!
Tue, 07/24/2007 - 22:24Comments
Re: Nocturnal seizure... what is it?!
Submitted by wyboemail on Tue, 2008-04-01 - 16:47
My nine year old son was diagnosed with benign Rolandic Epilepsy. His seizures only happen while sleeping. Usualy within an hour after falling a sleep or once upon waking up. He had one once within a minute of falling a sleep. They say he will outgrow it by puberty. He has had numerous eeg's and all but one came back normal. He even had a 3 day veeg. Normal. he also has Arnold Chiari Malformation. the MRI he had after his first seizure showed this. He shows no symptoms of the ACM at this point. A lot of people have that without ever showing symptoms. Hope you get some answers. Email me if you would like. curtis.wybourn@qbeamericas.com
My nine year old son was diagnosed with benign Rolandic Epilepsy. His seizures only happen while sleeping. Usualy within an hour after falling a sleep or once upon waking up. He had one once within a minute of falling a sleep. They say he will outgrow it by puberty. He has had numerous eeg's and all but one came back normal. He even had a 3 day veeg. Normal. he also has Arnold Chiari Malformation. the MRI he had after his first seizure showed this. He shows no symptoms of the ACM at this point. A lot of people have that without ever showing symptoms. Hope you get some answers. Email me if you would like. curtis.wybourn@qbeamericas.com
Re: Nocturnal seizure... what is it?!
Submitted by Coney Island on Tue, 2008-04-01 - 20:36
Hi Alana,
Nocturnal seizures are convulsions that occur in sleep, usually in the REM stage of sleep from my own personal research into it. It is usually brought on by certain stressors. I have had nocturnal seizures that are brought on by lack of sleep and mental/physical exhaustion which also sounded like your situation. The first onset were perpetuated by my full time job, marathon training and studying for my MCATs. I started convulsing one night and awoke with my tongue completely chewed up, a massive migraine and my muscles all achy.
Do not let your treatment fall by the wayside and do yourself a favor by being compliant and proactive in your treatment. The side effects of the drugs are intolerable, have the dosage titrated to minimize the effects. The doctor does not see eye to eye with you- get another doctor. I actually had a doctor in the past say to me, "I am going to ask you to get another doctor since you refuse to be compliant." He ignored my complaints that the Tegretol made it difficult to concentrate.
You have only had one, but seizures beget other seizures. I thought I could "control" them myself by getting more sleep... I was wrong. I ended up putting off grad school until now because the seizures that were perpetuated by my anxiety forced me to keep delaying my exams. Everyone has the potential to have a seizure, but once the threshold has been lowered- it is really difficult for the brain cells to resist another convulsion. In my experience, most patients don't die from the seizure itself, they incure other accidents during the seizure. Don't discount the potential for a severe accident.
Take care!
Cons
Hi Alana,
Nocturnal seizures are convulsions that occur in sleep, usually in the REM stage of sleep from my own personal research into it. It is usually brought on by certain stressors. I have had nocturnal seizures that are brought on by lack of sleep and mental/physical exhaustion which also sounded like your situation. The first onset were perpetuated by my full time job, marathon training and studying for my MCATs. I started convulsing one night and awoke with my tongue completely chewed up, a massive migraine and my muscles all achy.
Do not let your treatment fall by the wayside and do yourself a favor by being compliant and proactive in your treatment. The side effects of the drugs are intolerable, have the dosage titrated to minimize the effects. The doctor does not see eye to eye with you- get another doctor. I actually had a doctor in the past say to me, "I am going to ask you to get another doctor since you refuse to be compliant." He ignored my complaints that the Tegretol made it difficult to concentrate.
You have only had one, but seizures beget other seizures. I thought I could "control" them myself by getting more sleep... I was wrong. I ended up putting off grad school until now because the seizures that were perpetuated by my anxiety forced me to keep delaying my exams. Everyone has the potential to have a seizure, but once the threshold has been lowered- it is really difficult for the brain cells to resist another convulsion. In my experience, most patients don't die from the seizure itself, they incure other accidents during the seizure. Don't discount the potential for a severe accident.
Take care!
Cons
Greeting My name is sarah
Submitted by sarahumah on Wed, 2020-03-18 - 01:56
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