Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

If you cant be nice than dont say anything at all

Wed, 04/19/2006 - 14:27
I came across a post that was all about someones fears and the fact that they are having a hard time with what they are going thru. In one of the responses they got it came across as what I felt was a very mean and uncaring response. I think that this forum is a way for people to express there feelings and thoughts the good the bad and the ugly. I would hate to think that in responding to these thoughts that we as a group would be or try to be understanding and supportive. If we cant be nice than we shouldnt respond at all no one needs there feelings to be dismissed or made to feel invalid or that they dont count. I think we all need to remember that we need to treat others the way we would like to be treated no more or no less. Because we never know how one kind word might make someones world a little better, or one nasty word might make there world crumble around them. I think that we should remember what we learned as childeren "play nice or dont play at all"

Comments

Re: Re: Hi Cathy_C. Thank you for

Submitted by happycat2 on Sun, 2006-04-30 - 16:38
Hi Gretchen. I once read research that pointed out about the effects of seizures affecting and interrupting memory flow during a particular time or moment. The research was talking about research done into seizure typing for future reference to be saved for safety reasons in case it happened again. I guess the same applies when having seizure activity and typing, then realizing later what you intended to write wasn't that at all really. Hindsight can be a wonderful thing don't you find. I already know as you do that meds can, will — even do interrupt the process of thinking, and functioning outside what we consider to be our own particular' norm.' When they do, and the events you describe happen-pain and misunderstanding will occur. It can be so easy then trying to relate the issue to the cause, without looking at the big picture. If you think about the habits you have now and how they affect virtually every aspect of your life, I hope you get what I mean. Your weight and health for example are determined by your eating habits,same as your relationships with people are determined by your social habits. You don't want to go around wanting to lay blame anywhere. Unfortunate if you did, as pain is caused, along with confusion, that can set off a chain of events never meant to happen. The results of those events can linger. I know that's happened to me in the past. I remember when I was thought to be an unfit mother after posting someplace about the problems I was having with my daughter. I guess the persons that read the post didn't like updates, or were in the throes of seizure activity and had trouble joining the dots. Maybe they mistook my thoughts for someone else-that's happened also. Instant recall is a wonderful thing if you posses that. The brain though doesn't have it when misfiring. As the research I've read on this says when you have recall- and not through clouded judgement, then-treat that as a gift. One you wouldn't to toss away lightly. Who would, unless you were a fool, or had your agenda for doing so. Cat. "Many false prophets are gone out into the world." 1 John 4:1

Re: Re: Re: Hi Cathy_C. Thank you for

Submitted by Cathy_C on Tue, 2006-05-02 - 05:59
Good morning girls, I haven't been on here in a few days because of a busy weekend and having to work yesterday, but it was nice to sit down and read what you all have written. You have some good thinking there. I have some great news, after 10yrs of not being able to drive with the help of my VNS surgery and my meds I was able to go Friday 4/28 and get my license back. It was like something I never saw possible in my future years ago. I have longed for this feeling of freedom for years now. I turned a year older yesterday 5/1 and that was about the best Birthday present anyone could have given me, not to mention the 2005 Dodge Stratus my hubby bought me :) Well ladies, have a great day and hope your weekend was nice as mine. May you make someone smile today because they saw you smiling. Hugzzzzzzzz We all need one of those every once in a while ;)

Hi Cathy_C. It's Ok, we all

Submitted by happycat2 on Sat, 2006-05-13 - 18:35
Hi Cathy_C. It's Ok, we all have busy times when we can't get to the places we would like to be. This is the first chance myself I've had to get here. I've been away on vacation. I am so pleased for you that you got that news, along with a wonderful Birthday present. You are so lucky to have a husband like that, he sounds really understanding of your needs, as we are. I've always thought as adults (including husbands .) we do realize what's important to us. So much so when I've been off the road through health issues, I've realized I can't wait to be back behind the wheel! It helps if others are aware of it, and are willing to be part of the solution to the problem. Sometimes it feels that the 'experts' don't always realize that includes the freedom to do as we want, and not feel controlled. It's so easy to get that feeling when you are being told you shouldn't be driving, and why by your medical personnel. It's not as if we didn't know already, and hadn't considered the safety implications. I always have, and I may still be driving that old beat up van of mine, but I sure know myself, and take onboard the thoughts of other posters. When my doctor feels that I am doing well enough to drive, I drive, will be later to go see my Mother. Thank goodness the law of Kentucky is not as harsh as in some places. We have no public transportation where I live. I laughed a few years ago when I pictured myself trying to haul my daughter and her belongings back and forth on a bus.LOL. It was just a mental pic then that made me giggle. In Kentucky, you loose your license if you have a seizure but can get them back after 90 days of being seizure free. During the years when I first developed E, I did not drive for over a year and then the same when it re-appeared after the birth of my son. It was hard as I was used to my independence but I survived.You know, sometimes what we think not possible can really happen, and when that does-what a great feeling-as if you needed telling! Hang in there, and stay positive and upbeat-it helps. Happy driving, and don't work to hard, make some time for yourself and your friends. Cat. "Many false prophets are gone out into the world." 1 John 4:1

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.