Severe leg pain/tingling and seizures

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I am at wits end for my daughter. Diagnosed 4 years ago. Have not yet found a med that works for her. Lately she has constant seveer leg pain/tingling. She has to get up and walk around saying Ow OW OW OW till it subsides. Yesterday she had 7 eposides - 2 of which went into seizures. Today looks like another day of the same. First leg feeling at 5am and again on bus en route to school. Has anyone had similar expereices?????

We are not getting anywhere with our docs.

Thanks.

Comments

My daughter’s seizures were

Submitted by Mom looking for answers on Sun, 2019-07-21 - 22:09

My daughter’s seizures were the same all 3 started with her feet cramping, to her legs, then shoots straight up to her brain each time it’s been a grand mal seizure but now it’s called clonic tonic they don’t know why and can’t pin point where it’s coming from ugh so frustrating

https://www.ncbi.nlm.nih.gov

Submitted by Torrid on Tue, 2020-01-14 - 16:29

https://www.ncbi.nlm.nih.gov/m/pubmed/21088977/

Re leg twitches + pain:

Submitted by Krystof_Huang on Thu, 2020-03-05 - 19:44

Re leg twitches + pain: POSSIBLE TEMPORARY CURE: PICO-IONIC MAGNESIUM. Suggest people read entire post for pros, cons. Also welcome suggestions. My 90+ godmother has exactly the symptoms at the top of this page... including ow ow ow. Firstly she had typical "restless legs." Non painful but prevents sleep. I treated her successfully with a few drops on legs of "Source Gamma E 400," COQ10 and full capsules of wheat germ oil. Based on my stopping sports-induced night twitching by eating 6 wheat germ oil capsules daily. This based on a 1970's Prevention article, "Vitamin E Cures Restless Legs." Wheat germ oil has relatively little vitamin E--and large amounts can stress the digestion. And I have tried so many antioxidants that any antioxidants tend to give me headaches, swollen tongue, etc. But wheat germ oil has special properties such as neutralizing excess uric acid. So I thought it prudent to use small amounts of each--except externally there seems no downside to large amounts of wheat germ oil. So this might work as well without the wheat germ oil. But I caution against more than a few drops of vitamin E and COQ10 on a daily basis--and external use directly on sore or twitching muscles seems more sensible than swallowing capsules. Anyway this worked. What did not work was "restful legs" homeopathic pills. And essential oil "leg tranquilizers" such as lavender oil. Although I have read of these working if applied with lengthy massages. Also "magnesium cream" did not seem to help. Incidentally there are homeopathic "leg cramp" and "menstrual cramp" formulas, very effective against all types of cramps. In the past these contained quinine. I stopped using homeopathics for cramps after finding that potassium citrate does as well and is obviously more basic nutritionally. However now I will get some "homeopathic leg cramps" for my godmother because her "restless legs" seem combined with cramp-like symptoms and potassium is not working....... Continued next message….

Re leg twitches + pain: POSSIBLE TEMPORARY CURE: PICO-IONIC MAGNESIUM. Suggest people read entire post for pros, cons. Also welcome suggestions. My 90+ godmother has exactly the symptoms at the top of this page... including ow ow ow. Firstly she had typical "restless legs." Non painful but prevents sleep. I treated her successfully with a few drops on legs of "Source Gamma E 400," COQ10 and full capsules of wheat germ oil. Based on my stopping sports-induced night  twitching by eating 6 wheat germ oil capsules daily. This based on a 1970's Prevention article, "Vitamin E Cures Restless Legs." Wheat germ oil has relatively little vitamin E--and large amounts can stress the digestion. And I have tried so many antioxidants that any antioxidants tend to give me headaches, swollen tongue, etc. But wheat germ oil has special properties such as neutralizing excess uric acid. So I thought it prudent to use small amounts of each--except externally there seems no downside to large amounts of wheat germ oil. So this might work as well without the wheat germ oil. But I caution against more than a few drops of vitamin E and COQ10 on a daily basis--and external use directly on sore or twitching muscles seems more sensible than swallowing capsules. Anyway this worked. What did not work was "restful legs" homeopathic pills. And essential oil "leg tranquilizers" such as lavender oil. Although I have read of these working if applied with lengthy massages. Also "magnesium cream" did not seem to help. Incidentally there are homeopathic "leg cramp" and "menstrual cramp" formulas,  very effective against all types of cramps. In the past these contained quinine.  I stopped using homeopathics for cramps after finding that potassium citrate does as well and is obviously more basic nutritionally. However now I will get some "homeopathic leg cramps" for my godmother because her "restless legs" seem combined with cramp-like symptoms and potassium is not working....... Continued next message….

Re leg twitches + pain: POSSIBLE TEMPORARY CURE: PICO-IONIC MAGNESIUM. Suggest people read entire post for pros, cons. Also welcome suggestions. My 90+ godmother has exactly the symptoms at the top of this page... including ow ow ow. Firstly she had typical "restless legs." Non painful but prevents sleep. I treated her successfully with a few drops on legs of "Source Gamma E 400," COQ10 and full capsules of wheat germ oil. Based on my stopping sports-induced night twitching by eating 6 wheat germ oil capsules daily. This based on a 1970's Prevention article, "Vitamin E Cures Restless Legs." Wheat germ oil has relatively little vitamin E--and large amounts can stress the digestion. And I have tried so many antioxidants that any antioxidants tend to give me headaches, swollen tongue, etc. But wheat germ oil has special properties such as neutralizing excess uric acid. So I thought it prudent to use small amounts of each--except externally there seems no downside to large amounts of wheat germ oil. So this might work as well without the wheat germ oil. But I caution against more than a few drops of vitamin E and COQ10 on a daily basis--and external use directly on sore or twitching muscles seems more sensible than swallowing capsules. Anyway this worked. What did not work was "restful legs" homeopathic pills. And essential oil "leg tranquilizers" such as lavender oil. Although I have read of these working if applied with lengthy massages. Also "magnesium cream" did not seem to help. Incidentally there are homeopathic "leg cramp" and "menstrual cramp" formulas, very effective against all types of cramps. In the past these contained quinine. I stopped using homeopathics for cramps after finding that potassium citrate does as well and is obviously more basic nutritionally. However now I will get some "homeopathic leg cramps" for my godmother because her "restless legs" seem combined with cramp-like symptoms and potassium is not working....... Continued next message….