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photosensitive diagnosis 7 yr old?
Fri, 06/18/2004 - 11:27Topic: Family & Friends
Hi,I,m a new member neurotic mom of a seven yr old girl.I was falling asllep one night, she was nest to me, I hada "normal Jerk". when this happened, she informed me that she gets jerks and shakes on the playground "only in one area of the playground. I thought she was crazy till i started reading about photosensitive epilepsy. She is scheduled for aan eeg on wednesday mar. 24th.I am discouraged because of so many reports that eegs are not always accurate in diagnosing seizures. she describes the seizure in great detail: upper body stiffens, sholders up, head back hands with fingers straighted and pulled toward thumb, up on toes. It's amazing she has not fallen backward when you see the position she is in. she also hears echos. lasts about 5 seconds. upon inspection of the area where this occurs, there is a fence with one inch slats, when you walk past, light flickers through. seven year olds do not make up this kind of detail. If anyone else has photosensitive epilepsy or has info on the diagnosis of such, can you please let me know? Also, if anyone has an idea of what type of seizure this may be classified as? thankyou!
Comments
RE: photosensitive diagnosis 7 yr old?
Submitted by anneellis on Wed, 2004-03-24 - 21:09
Hi everyone,Just wanted to let you know that my daughter had her eeg today. The technician did not see anything but mentioned that it looks as though (by her description) she is having tonic sezures. None of the provoking testswere successful in causing a seizure. Of course she said "i am not the dr. but i did not see anything suspicious." You kind of get the feeling they know what they're looking at though. Time will tell. If there is any change after the dr.s report i'll let you know, otherwise, thank you all for your help and suggestions.
RE: photosensitive diagnosis 7 yr old?
Submitted by seeker2 on Mon, 2004-03-29 - 13:41
annelise.Thank you for filling us in.I'm sorry that you didn't get the news you wanted when you took your daughter for the eeg.It's tough right now -I think we all realise that and are behind you in support.Seems like you got a good technician though,and hopefully the doc will fit this together for you and come up with an answer.Glad to see that you are offering others support as well in this forum.
RE: photosensitive diagnosis 7 yr old?
Submitted by seeker2 on Tue, 2004-03-23 - 22:34
Places like these are what it is all about annelise.To offer support when needed,and reassurance-even if just with an odd article or two.Good luck with the visit and keep us all informed as to what progress you make,and what the ped neurologist says when he does review it.