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photosensitive diagnosis 7 yr old?
Fri, 06/18/2004 - 11:27Topic: Family & Friends
Hi,I,m a new member neurotic mom of a seven yr old girl.I was falling asllep one night, she was nest to me, I hada "normal Jerk". when this happened, she informed me that she gets jerks and shakes on the playground "only in one area of the playground. I thought she was crazy till i started reading about photosensitive epilepsy. She is scheduled for aan eeg on wednesday mar. 24th.I am discouraged because of so many reports that eegs are not always accurate in diagnosing seizures. she describes the seizure in great detail: upper body stiffens, sholders up, head back hands with fingers straighted and pulled toward thumb, up on toes. It's amazing she has not fallen backward when you see the position she is in. she also hears echos. lasts about 5 seconds. upon inspection of the area where this occurs, there is a fence with one inch slats, when you walk past, light flickers through. seven year olds do not make up this kind of detail. If anyone else has photosensitive epilepsy or has info on the diagnosis of such, can you please let me know? Also, if anyone has an idea of what type of seizure this may be classified as? thankyou!
Comments
RE: photosensitive diagnosis 7 yr old?
Submitted by seeker2 on Mon, 2004-03-22 - 19:58
When examining the recordings, the neurologist looks for certain patterns that represent problems in a particular area of the brain. For example, certain types of seizures have specific brain wave patterns that the trained neurologist recognizes. Likewise, a normal brain has a specific brain wave pattern that the trained neurologist recognizes. The neurologist must look at all recorded tracings, decide what is normal and what is not, and determine what the abnormal tracings represent. The neurologist forwards the EEG results to the doctor who ordered the test, and you are then notified as arranged. http://www.emedicinehealth.com/articles/6573-8.aspI'm sure that we all want you to get to the bottom of this,and you are in a good place to be regarding being here advice wise in the support you are getting it would appear, e_nuffofthis is right on advice wise.Keep us all posted as to what happens and check this link out regarding correct procedure that should be followed for peace of mind,and not by your ped either.
RE: photosensitive diagnosis 7 yr old?
Submitted by anneellis on Mon, 2004-03-22 - 20:32
Seeker2, Thanks for directing me to that article. It really is amazing, the support and concern I have received here from people who dont even know me! I mentioned to tibet2, Katie is having her eeg at oakland childrens hopital, so i am hoping that a ped. neurologist willl be reveiwing it, and from the article you forwarded, this sound like it is probaly true. At least i know the pediatrician won't be evaluating it himself.Thanks for your help.
RE: photosensitive diagnosis 7 yr old?
Submitted by tibet2 on Wed, 2004-05-19 - 16:21
you're kidding!! i'm in the east bay. where are you? this is a huge area. i don't know a pediatric specialist. but i have a friend whose dad is a neuro surgeon at UCSF, so he could ask. i can't believe your ped would think he could diagnose and prescribe for E. he won't be able to read the EEG. you need to be an expert to do that, so he will be relying on someone else's interpretation of an EEG. even at that, interpretation of EEGs varies depending on who reads it.