Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Does anyone else's family ever let them down??
Thu, 11/25/2004 - 19:54Topic: Family & Friends
Today was a support group barbeque.I was planning to go. My daughter was going to come just so I wouldn't be alone. I have never been and was nervous. She changed her mind. I had a hard time, but was going to go anyway. My husband was going to leave work early to drive me. The time came and went. He didn't show up. An hour after I was ready he calls from the grocery store, asking if I want anything. I swore at him and hung up. As I write this I realize that he lied to me. He bought some stuff and came home. His excuse "I thought you took the bus" Why would he call to ask if I wanted anything if He thought I had already left?? He knew how much this meant to me. I have been talking about it all week. I am hurt and angry. 2 days ago he got up early to take his brother's car to the garage. This is an adult who can drive. For all of the talk of being there my family really doesn't care. Ok, so they have to watch the seizures. They don't understand how horrible you feel after them. Sorry for rambling. Am I wrong to be hurt and upset??
Comments
RE: Does anyone else's family ever let them down??
Submitted by jdrummond on Sat, 2004-07-31 - 07:39
As supportive as some family members can be, they just don't understand. I was diagnosed when I was 15. (I'm 44 ). Currently, I take Depakote ER and Dilantin. Three years ago, I started taking Lamictal instead and I started have seizures. My family became overprotective. They wouldn't let me do anything! They are starting to let me breathe but they don't want to acknowledge the side effects of the medicine I'm taking.(Like slurred speech, tremors, slow thinking etc.) To them, it's either you have epilepsy or you don't. Sometimes, I believe we're all here as teachers to show the world to can be a contributing member of society and have epilepsy TOO!
RE: RE: Does anyone else's family ever let them down??
Submitted by momof1 on Sun, 2004-08-01 - 09:39
I think you are right. There are times I make strange movements. I don't even know I am doing it. My husband will get mad at me and tell me everyone is looking. At times I ignore him. Other times I get mad.
We are like evreyone else on earth. Good days and bad. Some days I wish I could be normal (my memory, being tired, etc.) and other days I feel wonderful.
Just the other day my 13 yr old daughter commented that all of the problems I have to deal with have made her a better person.
There is a reason for everything. Most times I just try to find a bright side.
We are like evreyone else on earth. Good days and bad. Some days I wish I could be normal (my memory, being tired, etc.) and other days I feel wonderful.
Just the other day my 13 yr old daughter commented that all of the problems I have to deal with have made her a better person.
There is a reason for everything. Most times I just try to find a bright side.
RE: RE: RE: RE: Does anyone else's family ever let them down??
Submitted by momof1 on Tue, 2004-08-03 - 07:37
I'd like to talk sometime, but you didn't give an email.
Get in touch if you'd like.
Bye.
This is to Cheryl.
I'd like to talk sometime, but you didn't give an email.
Get in touch if you'd like.
Bye.