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Does anyone else's family ever let them down??

Thu, 11/25/2004 - 19:54
Today was a support group barbeque.I was planning to go. My daughter was going to come just so I wouldn't be alone. I have never been and was nervous. She changed her mind. I had a hard time, but was going to go anyway. My husband was going to leave work early to drive me. The time came and went. He didn't show up. An hour after I was ready he calls from the grocery store, asking if I want anything. I swore at him and hung up. As I write this I realize that he lied to me. He bought some stuff and came home. His excuse "I thought you took the bus" Why would he call to ask if I wanted anything if He thought I had already left?? He knew how much this meant to me. I have been talking about it all week. I am hurt and angry. 2 days ago he got up early to take his brother's car to the garage. This is an adult who can drive. For all of the talk of being there my family really doesn't care. Ok, so they have to watch the seizures. They don't understand how horrible you feel after them. Sorry for rambling. Am I wrong to be hurt and upset??

Comments

RE: Does anyone else's family ever let them down??

Submitted by hotdraco on Mon, 2004-07-26 - 18:13
There's one word for that and its ""ROUGH".  I know how it feels like when a family member disowns you or gives you a lie that makes you want to kill and it hurts though the hurt does go away.  I am only 25 and had epilepsy fsince i was 14 and i never had any support espically withmy mothers side for they think thtatseizures are the way of "SatansCommunication"and doesn't want to be near me.  i was hated until i moves to montreal 6 years ago .  With you in mind if they cannot support you then ask yoursewlf are they accepting you for you as an entire person or withopout the epilepsy?  You are a wonderful being no matter what and having epi;lepsy doesn't or shouldn't chage anything. I had to deal with the sadness of being left out in the cold though i gether from the way you expressed yourself that you are a strong one.  So keep taking your meds and be happy that you are alive.Respond to me.

RE: RE: Does anyone else's family ever let them down??

Submitted by momof1 on Tue, 2004-07-27 - 08:21

   It is very hard when someone disowns you.  Once you get past the initial hurt just tell yourself they are not worth your time.  Look what they are missing out on.  Some people only see one specific thing.  They miss out on the rest.
    People with some sort of a disability are usually more understanding of someone else's problems.  No-one wants to be sick, but try to find a bright side.  For me the bright side is that I got to stay home with my daughter.  Some who read this may not agree, that is your choice.
   If I focus on the good it gets easier.  I have met so many nice people.  I am more open minded and less judgemental.  Those who have disowned me.. maybe I wouldn't have liked them anyway.  As much as it can hurt and not make sense  I swear things happen for a reason.
   This sounds like a lecture.  I did not mean for that.  I am at peace with my life right now, tomorrow I may be depressed, I am speaking from what I feel.  For whoever reads this I wish you the best.

   It is very hard when someone disowns you.  Once you get past the initial hurt just tell yourself they are not worth your time.  Look what they are missing out on.  Some people only see one specific thing.  They miss out on the rest.
    People with some sort of a disability are usually more understanding of someone else's problems.  No-one wants to be sick, but try to find a bright side.  For me the bright side is that I got to stay home with my daughter.  Some who read this may not agree, that is your choice.
   If I focus on the good it gets easier.  I have met so many nice people.  I am more open minded and less judgemental.  Those who have disowned me.. maybe I wouldn't have liked them anyway.  As much as it can hurt and not make sense  I swear things happen for a reason.
   This sounds like a lecture.  I did not mean for that.  I am at peace with my life right now, tomorrow I may be depressed, I am speaking from what I feel.  For whoever reads this I wish you the best.

RE: RE: RE: Does anyone else's family ever let them down??

Submitted by Bandcheryl on Wed, 2004-07-28 - 00:16

Hi, how are you doing?  Well, I hope you are doing good.  You sound a lot like me...sometimes.  I try as hard as I can to look at everything in a good way, but then there are times that you can't help but be sad or depressed.  I also agree that everything happens for a reason, and I'm still trying to figure out why I got these things, but I know things will work out for all of us.  We just have to stay tough and hang in there.  I just got my seizures out of the blue three years ago.  And the doc's don't know what causes them.  I've tried tons of med's and had right lobectomy lasr Sept.  It only lessoned my seizures because my seizures are coming from both sides of my brain.  So, now I'm looking into the VNS.  I'm trying anything.  I have complex partial.  I think you said that you have the same, but excuse me if i'm wrong.  My memory isn't exactly top notch.  Well, I will let you go, feel free to reply, I'd love to chat.  Hope all is going well for both you and your daughter,

                    Take care,            Cheryl

Hi, how are you doing?  Well, I hope you are doing good.  You sound a lot like me...sometimes.  I try as hard as I can to look at everything in a good way, but then there are times that you can't help but be sad or depressed.  I also agree that everything happens for a reason, and I'm still trying to figure out why I got these things, but I know things will work out for all of us.  We just have to stay tough and hang in there.  I just got my seizures out of the blue three years ago.  And the doc's don't know what causes them.  I've tried tons of med's and had right lobectomy lasr Sept.  It only lessoned my seizures because my seizures are coming from both sides of my brain.  So, now I'm looking into the VNS.  I'm trying anything.  I have complex partial.  I think you said that you have the same, but excuse me if i'm wrong.  My memory isn't exactly top notch.  Well, I will let you go, feel free to reply, I'd love to chat.  Hope all is going well for both you and your daughter,

                    Take care,            Cheryl

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