Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Temporal Lobe Epilepsy: what does it feel like?
Sat, 06/06/2009 - 13:00Hi Everyone!
This is my first time on this site and I am glad to have found you all! I was "diagnosed" with Temporal Lobe Epilepsy 18mths ago following years of strange symptoms, 3 abnormal EEG's and an MRI which showed a leision in the Lt T Lobe. I was supposed to take Lamictal but so far am too scared to. I have different symptoms including, fear, shivering, dizziness, visual disturbances, etc.
My neurologist now thinks because my symptoms have changed i.e. shivering and some twitching of limbs occasionally, and a weird feeling that my stomach is rising into my throat and choking me ( at night) that I should have a Video EEG to clarify things. I really don't want to take Meds until they are SURE that the diagnosis is correct because I react badly to meds.
I would be really grateful if anyone could shed any light on what TLE is like for them and also if you have had the Video EEG what it's like.
Thanks!
Hello Michelle. I hope you're
Submitted by KavehP on Mon, 2020-03-02 - 15:07
Hello Michelle. I hope you're well and experiencing a decline in the episodes that you mention. You know, it's crazy because your post provides a similar account of what it is that I also experience.Unlike yourself, I'm not triggered by lights. Rather, it seems that confrontation is what induces my episodes. But like you, I'll feel really 'tight' in the face and head. I know that to be the case because it feels like I'm incapable of smiling or producing any facial expressions, lol. Eye contact becomes very overwhelming and my brain feels 'blank'. I'm able to respond and even exercise cognitive abilities (having a conversation involving the retrieval of memories etc.). Having said that, my brain feels super blocked as do my thoughts, but nobody would know, even in conversation.It's all just incredibly perplexing to me. I do suffer pretty debilitating anxiety though, do you? Hmm, I know for a fact that I have SP seizures though. I have had them since I was a teenager but they seemed to subside to just one or two a year (after taking Omega 3 daily). Do any of the symptoms I describe sound familiar to you?Feel free to shoot me a message on Facebook if you want. It would be lovely to troubleshoot this.