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Temporal Lobe Epilepsy: what does it feel like?
Sat, 06/06/2009 - 13:00Hi Everyone!
This is my first time on this site and I am glad to have found you all! I was "diagnosed" with Temporal Lobe Epilepsy 18mths ago following years of strange symptoms, 3 abnormal EEG's and an MRI which showed a leision in the Lt T Lobe. I was supposed to take Lamictal but so far am too scared to. I have different symptoms including, fear, shivering, dizziness, visual disturbances, etc.
My neurologist now thinks because my symptoms have changed i.e. shivering and some twitching of limbs occasionally, and a weird feeling that my stomach is rising into my throat and choking me ( at night) that I should have a Video EEG to clarify things. I really don't want to take Meds until they are SURE that the diagnosis is correct because I react badly to meds.
I would be really grateful if anyone could shed any light on what TLE is like for them and also if you have had the Video EEG what it's like.
Thanks!
I have no idea how old this
Submitted by JazyFae on Sun, 2019-01-06 - 06:34
I have no idea how old this thread is but it's like reading my own story. Started having small episodes like this in 2014. Get this funny feeling rising in my stomach up to my chest. Then I get intense fear and feeling like im going to be sucked out of my body. Then my heart is pounding feel sick and I shake. Looks like my EEG showed spikes in my temporal lobe. Now I am waiting for 72 hour EEG.