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Temporal Lobe Epilepsy: what does it feel like?

Sat, 06/06/2009 - 13:00

Hi Everyone!

This is my first time on this site and I am glad to have found you all!  I was "diagnosed" with Temporal Lobe Epilepsy 18mths ago following years of strange symptoms, 3 abnormal EEG's and an MRI which showed a leision in the Lt T Lobe.  I was supposed to take Lamictal but so far am too scared to.  I have different symptoms including, fear, shivering, dizziness, visual disturbances, etc.

My neurologist now thinks because my symptoms have changed i.e. shivering and some twitching of limbs occasionally, and a weird feeling that my stomach is rising into my throat and choking me ( at night) that I should have a Video EEG to clarify things.  I really don't want to take Meds until they are SURE that the diagnosis is correct because I react badly to meds. 

I would be really grateful if anyone could shed any light on what TLE is like for them and also if you have had the Video EEG what it's like.

Thanks!

 

Comments

Hi Melrod, Sounds very

Submitted by Natalia_592dd63a59e02 on Tue, 2017-05-30 - 16:58
Hi Melrod, Sounds very similar to my boyfriend's story who has TLE http://anepilepticlife.com/

Hi Eva, Sounds very similar

Submitted by Natalia_592dd63a59e02 on Tue, 2017-05-30 - 16:58
Hi Eva, Sounds very similar to my boyfriend's story who has TLE http://anepilepticlife.com/

Hi Heather, Sounds very

Submitted by Natalia_592dd63a59e02 on Tue, 2017-05-30 - 16:58
Hi Heather, Sounds very similar to my boyfriend's story who has TLE http://anepilepticlife.com/

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