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vns therapy side effects

Wed, 02/15/2006 - 10:10
I joined this site yesterday and I'm interesting in touching base with anyone who has a vns. In particular I would like to find out if anyone has experienced any unusual side effects not mentioned by Cyberonics. I occasionally experience 'tingling' in my neck and shoulder - this is actually quite unpleasant and it has been severe enough to warrant having my vns temporarily turned off. At one point last summer it felt like I was being repeatedly stung by a bee or something like that (I'm not sure exactly how to describe it). Cyberonics claims that no one has ever mentioned anything similar to this. I have been quite happy with my vns - it has helped stop many seizures once they have started, which has meant fewer trips to the ER but if this problem became really severe again I wouldn't be able to keep my vns turned on. Please let me know if you have experienced anything like this - I would like to know - Cyberonics makes it sound like I'm crazy or something. Thanks!!!

Comments

Re: vns therapy side effects

Submitted by breakersfan on Thu, 2011-10-27 - 21:10
How long have you had your VNS in for as I've had mine in for 4 months and only in the last week have I started experiencing very sharp pains in my neck that only last approx 2 mins and are 3-4 mins apart, my neurologist has no idea what this means is this what your pain problem is too?

Re: vns therapy side effects

Submitted by breakersfan on Thu, 2011-10-27 - 21:11
How long have you had your VNS in for as I've had mine in for 4 months and only in the last week have I started experiencing very sharp pains in my neck that only last approx 2 mins and are 3-4 mins apart, my neurologist has no idea what this means is this what your pain problem is too?

Re: vns therapy side effects

Submitted by MarcyJSimon on Wed, 2008-08-27 - 11:02

Hello,

 I am so happy I found this site!  I really need some help and advice.  I am the aunt of a 16 year old and she is mentally delayed.  She has no verbal skills and cannot walk, crawl or talk or use sign language.  But she does have very severe seizers.  She has been on almost every medication her whole life and has exhaused all combos of medications, and she still has severe seizers.  The problem she has now is that all the meds make her tired and non-responsive.  She sleeps alot and is not alert.  Her doctor has recommened VNS and we are a bit scared to do this.  I read some blogs here and there seems to be a lot of pain with this.  But she cannot tell us if she hurts, so we would never know.  We dont want her in pain from this, but we dont know what else to do to help her.   This is my sisters only child and my only niece, she is so loved, we dont want her hurting, but we want her "back".  We dont want her to sleep all the time.  Do you think we should try this?  Please help!  Thank you.

Hello,

 I am so happy I found this site!  I really need some help and advice.  I am the aunt of a 16 year old and she is mentally delayed.  She has no verbal skills and cannot walk, crawl or talk or use sign language.  But she does have very severe seizers.  She has been on almost every medication her whole life and has exhaused all combos of medications, and she still has severe seizers.  The problem she has now is that all the meds make her tired and non-responsive.  She sleeps alot and is not alert.  Her doctor has recommened VNS and we are a bit scared to do this.  I read some blogs here and there seems to be a lot of pain with this.  But she cannot tell us if she hurts, so we would never know.  We dont want her in pain from this, but we dont know what else to do to help her.   This is my sisters only child and my only niece, she is so loved, we dont want her hurting, but we want her "back".  We dont want her to sleep all the time.  Do you think we should try this?  Please help!  Thank you.

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