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vns therapy side effects

Wed, 02/15/2006 - 10:10
I joined this site yesterday and I'm interesting in touching base with anyone who has a vns. In particular I would like to find out if anyone has experienced any unusual side effects not mentioned by Cyberonics. I occasionally experience 'tingling' in my neck and shoulder - this is actually quite unpleasant and it has been severe enough to warrant having my vns temporarily turned off. At one point last summer it felt like I was being repeatedly stung by a bee or something like that (I'm not sure exactly how to describe it). Cyberonics claims that no one has ever mentioned anything similar to this. I have been quite happy with my vns - it has helped stop many seizures once they have started, which has meant fewer trips to the ER but if this problem became really severe again I wouldn't be able to keep my vns turned on. Please let me know if you have experienced anything like this - I would like to know - Cyberonics makes it sound like I'm crazy or something. Thanks!!!

Comments

I had my stimulator inserted

Submitted by Brandis3gs on Mon, 2018-01-08 - 12:26
I had my stimulator inserted June 2nd 2015. I have not had any major concerns accept that 1 my voice is jacked up for over 2 years of this i had imagined I'd be over this by now. And 2 I noticed that when I yawn it seems as if the tube catches in my neck. I mean I don't how else to explain it. Thirdly I still have my petit mals and grand mals as usual. Now mind you my magnet works well IF someone is around to catch me....lol

Re: vns therapy side effects

Submitted by suebear on Sat, 2008-12-13 - 23:33

As for this test, it can be done. Part of the problem are two things, one being there are patients who are not in an area that can perform it and the other issue is there are administrators or health workers who do not know the protocol. There are some patients who cannot manage this test because of their health which is unfortunate. Because each patient is different, there is always going to be that slim chance of having this occurance. 

Here is the documentation that I have:

9.4.4. Magnetic Resonance Imaging
If you plan to have magnetic resonance imaging (MRI), make
sure your doctor has the following information:
! Magnetic resonance imaging (MRI) should not be
performed with a magnetic resonance body coil in the
transmit mode. The heat induced in the Lead by an MRI
body scan can cause injury.
If an MRI should be done, use only a transmit and receive
type of head coil. Magnetic and radiofrequency (RF) fields
produced by MRI may change the Pulse Generator settings
(change to reset parameters) or activate the device.
41
Stimulation has been shown to cause the adverse events
reported in the “Adverse Events” section of this manual.
MRI compatibility was demonstrated using a 1.5T General
Electric Signa Imager and Model 100 Pulse Generator only.
Testing on this imager as performed on a phantom indicated
that the following Pulse Generator and MRI settings can be
used safely without adverse events:
¨  Pulse Generator output programmed to 0 mA for the MRI
procedure, and afterward, retested by performing the
Lead Test diagnostics and reprogrammed to the original
settings
¨  Head coil type: transmit and receive only
¨  Static magnetic field strength: £ 2.0 tesla
¨  Specific-rate absorption (SAR): < 1.3 W/kg for a 70-kg
(154.5-lb) patient
¨  Time-varying intensity: < 10 tesla/sec
Use caution when other MRI systems are used, since adverse
events may occur because of different magnetic field
distributions.
! No scan in which the radiofrequency (RF) is transmitted
by the body coil should be done on a patient who has
the VNS Therapy System. Thus, protocols must not be
used which utilize local coils that are RF-receive only,
with RF-transmit performed by the body coil. Note that
some RF head coils are receive only, and that most other
local coils, such as knee and spinal coils, are also RFreceive
only. These coils must not be used in patients
with the VNS Therapy System.

Courtesy of www.cyberonics.com 

As for this test, it can be done. Part of the problem are two things, one being there are patients who are not in an area that can perform it and the other issue is there are administrators or health workers who do not know the protocol. There are some patients who cannot manage this test because of their health which is unfortunate. Because each patient is different, there is always going to be that slim chance of having this occurance. 

Here is the documentation that I have:

9.4.4. Magnetic Resonance Imaging
If you plan to have magnetic resonance imaging (MRI), make
sure your doctor has the following information:
! Magnetic resonance imaging (MRI) should not be
performed with a magnetic resonance body coil in the
transmit mode. The heat induced in the Lead by an MRI
body scan can cause injury.
If an MRI should be done, use only a transmit and receive
type of head coil. Magnetic and radiofrequency (RF) fields
produced by MRI may change the Pulse Generator settings
(change to reset parameters) or activate the device.
41
Stimulation has been shown to cause the adverse events
reported in the “Adverse Events” section of this manual.
MRI compatibility was demonstrated using a 1.5T General
Electric Signa Imager and Model 100 Pulse Generator only.
Testing on this imager as performed on a phantom indicated
that the following Pulse Generator and MRI settings can be
used safely without adverse events:
¨  Pulse Generator output programmed to 0 mA for the MRI
procedure, and afterward, retested by performing the
Lead Test diagnostics and reprogrammed to the original
settings
¨  Head coil type: transmit and receive only
¨  Static magnetic field strength: £ 2.0 tesla
¨  Specific-rate absorption (SAR): < 1.3 W/kg for a 70-kg
(154.5-lb) patient
¨  Time-varying intensity: < 10 tesla/sec
Use caution when other MRI systems are used, since adverse
events may occur because of different magnetic field
distributions.
! No scan in which the radiofrequency (RF) is transmitted
by the body coil should be done on a patient who has
the VNS Therapy System. Thus, protocols must not be
used which utilize local coils that are RF-receive only,
with RF-transmit performed by the body coil. Note that
some RF head coils are receive only, and that most other
local coils, such as knee and spinal coils, are also RFreceive
only. These coils must not be used in patients
with the VNS Therapy System.

Courtesy of www.cyberonics.com 

My grandson received his

Submitted by Lisa Washington on Fri, 2018-08-10 - 02:29
My grandson received his vnstimulator yesterday. He is 6yo and is scheduled to go back in 2weeks to get it turned on. Is there anyone that experienced young children having this done? I would like to know their experience with this

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