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vns therapy side effects
Wed, 02/15/2006 - 10:10Topic: Complementary Therapies
I joined this site yesterday and I'm interesting in touching base with anyone who has a vns. In particular I would like to find out if anyone has experienced any unusual side effects not mentioned by Cyberonics. I occasionally experience 'tingling' in my neck and shoulder - this is actually quite unpleasant and it has been severe enough to warrant having my vns temporarily turned off. At one point last summer it felt like I was being repeatedly stung by a bee or something like that (I'm not sure exactly how to describe it). Cyberonics claims that no one has ever mentioned anything similar to this. I have been quite happy with my vns - it has helped stop many seizures once they have started, which has meant fewer trips to the ER but if this problem became really severe again I wouldn't be able to keep my vns turned on. Please let me know if you have experienced anything like this - I would like to know - Cyberonics makes it sound like I'm crazy or something. Thanks!!!
Comments
Re: vns therapy side effects
Submitted by breakersfan on Thu, 2011-10-27 - 21:03
How long have you had your VNS in for as I've had mine in for 4 months and only in the last week have I started experiencing very sharp pains in my neck that only last approx 2 mins and are 3-4 mins apart, my neurologist has no idea what this means is this what your pain problem is too?
Re: vns therapy side effects
Submitted by breakersfan on Thu, 2011-10-27 - 21:06
How long have you had your VNS in for as I've had mine in for 4 months and only in the last week have I started experiencing very sharp pains in my neck that only last approx 2 mins and are 3-4 mins apart, my neurologist has no idea what this means is this what your pain problem is too?
Re: vns therapy side effects
Submitted by Riahs Mom on Thu, 2009-11-19 - 11:37
Hello everyone,
My Beautiful daughter Mariah received the VNS in January of 2000. I was given hopes and promises of a "better life" for my child. Over the years, the frequency of the seizures and the E.R visits decreased. The problems started when her voice began to change to wrapsy. The docs said it was a normal side effect. In late August of 2009 her seizure activity increased. We went to the doctor in September and the physician said her settings were still low and there was room to increase the settings. He did. Later that day my daughter complained of hiccups and they lasted a really long time. I was told by the docs that this was a normal side effect. My daughter's hiccups lasted until the day she died- October 25, 2009.
I am devastated.
Hello everyone,
My Beautiful daughter Mariah received the VNS in January of 2000. I was given hopes and promises of a "better life" for my child. Over the years, the frequency of the seizures and the E.R visits decreased. The problems started when her voice began to change to wrapsy. The docs said it was a normal side effect. In late August of 2009 her seizure activity increased. We went to the doctor in September and the physician said her settings were still low and there was room to increase the settings. He did. Later that day my daughter complained of hiccups and they lasted a really long time. I was told by the docs that this was a normal side effect. My daughter's hiccups lasted until the day she died- October 25, 2009.
I am devastated.