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vns therapy side effects

Wed, 02/15/2006 - 10:10
I joined this site yesterday and I'm interesting in touching base with anyone who has a vns. In particular I would like to find out if anyone has experienced any unusual side effects not mentioned by Cyberonics. I occasionally experience 'tingling' in my neck and shoulder - this is actually quite unpleasant and it has been severe enough to warrant having my vns temporarily turned off. At one point last summer it felt like I was being repeatedly stung by a bee or something like that (I'm not sure exactly how to describe it). Cyberonics claims that no one has ever mentioned anything similar to this. I have been quite happy with my vns - it has helped stop many seizures once they have started, which has meant fewer trips to the ER but if this problem became really severe again I wouldn't be able to keep my vns turned on. Please let me know if you have experienced anything like this - I would like to know - Cyberonics makes it sound like I'm crazy or something. Thanks!!!

Comments

For the past few years I have

Submitted by megaflores on Fri, 2017-03-31 - 22:36
For the past few years I have had difficulty working out in yard, then in 2015 it got harder and harder to breathe. After many tests, it was a CT scan that showed COPD, emphysema and scarring in my lungs. I quit smoking 8 years ago but the damage has been done. I got to a point I couldn't catch my breath and was coughing so hard I thought the top of my head would blow off, nothing was really working to help my condition. Finally i started on COPD herbal formula i purchased from NewLife Herbal Clinic, i read alot of positive reviews from other patients who used the COPD herbal treatment. I used the herbal remedy for 7 weeks, its effects on COPD is amazing, all my symptoms gradually faded away, i breath very more freely now! (Visit www . newlifeherbalclinic. com ) I recommend this COPD herbal formula for all COPD/Emphysema sufferersMegan FloresNew Jersey, USA. 

Re: vns therapy side effects

Submitted by suebear on Mon, 2012-10-15 - 07:42
VNS therapy update... It's been a long time since I've been able to connect onto the forum between daily life and other activities that are happening. At any rate, I had to give an update on what has been going on with the VNS. 1) I'm still using the VNS at this time however there have been new changes. 2) As of Oct 2011 I actually got an update to the latest version including another addition because the seizures were totally out of control -- four or five a day. Because the VNS could no longer handle my seizure activity with the settings it was best to go the next step and go with a Deep Brain Stimulator. The VNS was updated to the smaller device as the battery needed to be replaced while I was in the hospital. 3) Once we found the correct settings for the DBS the medication dosage was slowly dropped. I am now taking next to nothing. The next step we have been discussing is to begin removal of medication but we are not quite ready to do that just yet. 4) As of this month it has been a year for my DBS surgery. Not only that, the VNS device has been left at default settings so there now is consideration for what to do with that device at this time. Oh, in the process of all the above, I had to leave my doctorate studies due to the medical surgery then due to recovery. In the end, I felt it was best to stop classes over all and focus on my health. =) S. Elvins

My husband had VNS placed

Submitted by Toni Thompson Martin on Sun, 2019-03-10 - 09:36
My husband had VNS placed Sept 7 2018. In Oct started having contractions in the neck. We thought this was normal but after recent CT scan found that VNS leads had "moved" or been placed wrong. It is touching the sternocleidomastoid muscle causing pain with contraction of the muscle. LivaNova/Cyberonics manufacturer was who suggested we get in contact with the surgeon. My husband goes in for exploratory surgery next month. Hopefully thy can reposition the leads other wise will have to turn it off. He has 20 seizures average every day. Hoping repositioning.

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