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vns therapy side effects

Wed, 02/15/2006 - 10:10
I joined this site yesterday and I'm interesting in touching base with anyone who has a vns. In particular I would like to find out if anyone has experienced any unusual side effects not mentioned by Cyberonics. I occasionally experience 'tingling' in my neck and shoulder - this is actually quite unpleasant and it has been severe enough to warrant having my vns temporarily turned off. At one point last summer it felt like I was being repeatedly stung by a bee or something like that (I'm not sure exactly how to describe it). Cyberonics claims that no one has ever mentioned anything similar to this. I have been quite happy with my vns - it has helped stop many seizures once they have started, which has meant fewer trips to the ER but if this problem became really severe again I wouldn't be able to keep my vns turned on. Please let me know if you have experienced anything like this - I would like to know - Cyberonics makes it sound like I'm crazy or something. Thanks!!!

Comments

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Re: vns therapy side effects

Submitted by Tadybug on Wed, 2011-10-19 - 17:11

I have had uncontrolled seizures for almost eight years after a TBI. I am on four medications now and my doctor keeps pushing the VNS on me, telling me that is my only option. Your posts have opened my eyes.

 I was never enthusiastic about this "therapy" to begin with, but now I am terrified.

 I send out my deepest condolences to everyone who has lost someone or who has lost part of themselves because of this device. Thank you to everyone that helped me become aware of this information, if it hadn't been for you I never would have known about these risks. My doctor sure hadn't told me about them....

I have had uncontrolled seizures for almost eight years after a TBI. I am on four medications now and my doctor keeps pushing the VNS on me, telling me that is my only option. Your posts have opened my eyes.

 I was never enthusiastic about this "therapy" to begin with, but now I am terrified.

 I send out my deepest condolences to everyone who has lost someone or who has lost part of themselves because of this device. Thank you to everyone that helped me become aware of this information, if it hadn't been for you I never would have known about these risks. My doctor sure hadn't told me about them....

Re: vns therapy side effects

Submitted by teachergreen on Mon, 2009-11-16 - 11:26

Hello,

Could it be the level on which the vns is set? Mine has worked fine and even has stopped a few seizures. I know the last time I had my doctor adjust the setting I couldn't stand the feeling of the new level and asked him to go back. It's standard that he increases the level. I'm not sure what he'll do next but this for me is fine now.

Hope all goes well

Hello,

Could it be the level on which the vns is set? Mine has worked fine and even has stopped a few seizures. I know the last time I had my doctor adjust the setting I couldn't stand the feeling of the new level and asked him to go back. It's standard that he increases the level. I'm not sure what he'll do next but this for me is fine now.

Hope all goes well

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