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A Possitive Outlook

Wed, 01/25/2006 - 13:05
I have been reading over the other threads here. There doesn't really seem to be very many people that have...I guess you would say, come to terms with their epilepsy. I have had it myself for over 13 years. I struggled for many years before I would even accept that I would probably be on meds for the rest of my life. I finally accepted it after my neuro said "You need to admit that you have a seizure disorder. You will have it the rest of your life. It isn't the type that will go away, even with medication. Figure out a way to accept it and deal with it or it will control you life." It is hard, but I eventually came to accept it. Don't get me wrong, I still do everything that I can to both control it and learn about it. One of my main problems is that I alway felt like a burden to others. Every time that I had a seizure, my first words afterwards were "I'm sorry." That is the one area that I still struggle with. It's a toughy. Has anyone else been able to come to terms and accept their disorder? Does anyone else have the problem of feeling guilty for having epilepsy? I don't mean to be offensive. I just need to hear that eventually, it gets easier.

Comments

Re: A Possitive Outlook

Submitted by rebmil on Fri, 2013-06-14 - 18:19

Hello. I am finally accepting my seizure disorder. I can't really say I have epilepsy because no doctor has  diagnosed me as having it. They only say I have a seizure disorder. But I read that seizure disorder is a newer name for epilepsy. I first started having grand mal seizures only in my sleep 5 years ago, starting in 2009. I was put on Dilantin then Phenytoin and after taking the med for a year, I started to notice I was losing my memory. So I weaned myself off it and now I take no medication for my seizures. I have 1 maybe 2 a month. I recently got a job and I told my employer I have seizures only in my sleep. He said that is fine. I was shocked! Because most employers do not like people having seizures. But I haven't told him I don't take medication for them. But that is my personal business. Anyways, if I have a seizure on a day I have to work I will just go to work. I did it before and it was hard. But I am strong and can handle seizures! Good day!

 

Hello. I am finally accepting my seizure disorder. I can't really say I have epilepsy because no doctor has  diagnosed me as having it. They only say I have a seizure disorder. But I read that seizure disorder is a newer name for epilepsy. I first started having grand mal seizures only in my sleep 5 years ago, starting in 2009. I was put on Dilantin then Phenytoin and after taking the med for a year, I started to notice I was losing my memory. So I weaned myself off it and now I take no medication for my seizures. I have 1 maybe 2 a month. I recently got a job and I told my employer I have seizures only in my sleep. He said that is fine. I was shocked! Because most employers do not like people having seizures. But I haven't told him I don't take medication for them. But that is my personal business. Anyways, if I have a seizure on a day I have to work I will just go to work. I did it before and it was hard. But I am strong and can handle seizures! Good day!

 

Re: A Possitive Outlook

Submitted by vivaciousgemini22 on Fri, 2013-06-14 - 18:17

I have had epilepsy for 20 years. Eventually it does get better over the years. You just have to keep on telling yourself that, "I am uniquely beautiful." And I mean uniquely beautiful. God made you this way because he knew that you can handle it. Everyone has their down days. There are some days where I can't take it anymore and cry. But I try to keep a positive mindset and you will eventually do the same thing in the future. Just have faith in yourself. Me and the rest of the people on this website has your back.

When I have a seizure, I be like "danggit. It's a never ending battle." But I got to deal with it. I had days where I felt drunk, sleepy, dizzy, tired, and annoyed and damn near fell down on the floor because they were nonstop. The medicine wasn't working but I got through it. I just had to keep telling myself, "You can do it. Be positive about it. That's all."

Girl, you gon' get through it. Rock your epilepsy to the best of your ability. Don't let anybody tell you otherwise. :)

I have had epilepsy for 20 years. Eventually it does get better over the years. You just have to keep on telling yourself that, "I am uniquely beautiful." And I mean uniquely beautiful. God made you this way because he knew that you can handle it. Everyone has their down days. There are some days where I can't take it anymore and cry. But I try to keep a positive mindset and you will eventually do the same thing in the future. Just have faith in yourself. Me and the rest of the people on this website has your back.

When I have a seizure, I be like "danggit. It's a never ending battle." But I got to deal with it. I had days where I felt drunk, sleepy, dizzy, tired, and annoyed and damn near fell down on the floor because they were nonstop. The medicine wasn't working but I got through it. I just had to keep telling myself, "You can do it. Be positive about it. That's all."

Girl, you gon' get through it. Rock your epilepsy to the best of your ability. Don't let anybody tell you otherwise. :)

Re: A Possitive Outlook

Submitted by sporocarp on Fri, 2013-06-14 - 16:56
Hi! I'm new to the site and this will be my first post. I've been living w/ epilepsy for 30 years now and didn't start being OK with it until about 3 years ago. It was a long haul but I just got tired of running from it and something in me clicked. I'm not afraid of telling people I have epilepsy anymore. Maybe it's my age (45) but I just decided one day not to care what other people thought of me. Which was always what made me keep it a secret. I was afraid people would treat me differently. And you know what? Some do. But a lot more don't and they are the keepers. On the subject of "I'm sorry", I do that. Always have and probably always will. Honestly, I've never known anyone with epilepsy so I didn't know if that was a common behavior because I had no one to ask. Now I know! I'm really glad I decided to get registered here today. I feel like I'm not alone in this for the first time in my life. :)

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