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A Possitive Outlook
Wed, 01/25/2006 - 13:05I have been reading over the other threads here. There doesn't really seem to be very many people that have...I guess you would say, come to terms with their epilepsy. I have had it myself for over 13 years. I struggled for many years before I would even accept that I would probably be on meds for the rest of my life. I finally accepted it after my neuro said "You need to admit that you have a seizure disorder. You will have it the rest of your life. It isn't the type that will go away, even with medication. Figure out a way to accept it and deal with it or it will control you life." It is hard, but I eventually came to accept it. Don't get me wrong, I still do everything that I can to both control it and learn about it.
One of my main problems is that I alway felt like a burden to others. Every time that I had a seizure, my first words afterwards were "I'm sorry." That is the one area that I still struggle with. It's a toughy.
Has anyone else been able to come to terms and accept their disorder?
Does anyone else have the problem of feeling guilty for having epilepsy?
I don't mean to be offensive. I just need to hear that eventually, it gets easier.
Comments
Re: A Possitive Outlook
Submitted by Nick g on Wed, 2006-01-25 - 16:06
just quickly going to answer the questions.
I don't think i have fully come to terms with it yet althought i am getting there
The "im sorry" thing. Sounds familiar, yeh i always apoligise after seizures. i think because i get mess everywhere and people must get annoyed even if they dont show it
Re: A Possitive Outlook
Submitted by angel_lts on Thu, 2006-01-26 - 08:26
I have come to terms with my epilpesy. I have had it for 36 years and just about ten years ago I did. I have been through alot. I have had 6 brain surgeries, Ketogenit Diet, Neurofeedback, VNS, many, many different meds, drug studies, vitamins, omega three....
Things that were done as a child I had angry towards my mom, but she never knew it. FOr it would have been too hard for her to handle since she was in her late 70's. And I forgave her in my heart for it sent some relief in myself. I Decided to help others. I feel wonderful and I still deal with seizures.
I have a guilt trip when I have to ask others for rides. ANd I have said I am sorry whe I have had seizures, but to outsiders who dont truely know me.
No matter what, we have to accept our seizures in order to have a full and wonderful life. Yes it can be hard, but we must not let epilepsy control us, we have to control it!
thank you for posting this. Its good to know that there are others.
Lisa
http://health.groups.yahoo.com/group/epilepsyapproach/
Re: A Possitive Outlook
Submitted by nicki on Fri, 2013-06-14 - 21:42
Good to know there are other wonderful people out here that have experienced the same thing but are coping well. And have well found the solution to dealing with life with E. For me its just meant to be honest. No doctor or friend can help you if you dont tell them the truth. I would tell docs that I hadnt had any further seizures to get my license back eventhough I knew something was very wrong. I wouldn't tell my friends at all. And if I twitched I would say, oh I just had a chill. But E is too big a secret to keep especially if you have GM's. Now I've learned eventhough I seiz rarely to tell people and what to do in case it happens. And surprise surprise most people have reacted well and I feel a ton better. I do everything I can to control my E (thats my responsibility in having E) but if shit happens I know people will have my back. And yes I still say sorry after I seiz too, I think its mostly cause people look really scared after you wake up