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how do i get on with my life?

Wed, 05/25/2005 - 18:47
I'm 22 years old and I had my first seizure at the age of 10.  I had about 4 seizures from the time I was 10 until I was 12.  It took me forever it seems like to get over the fear of seizures.  For a while, I would go out.  All I wanted to do was sit at home.  I knew I had to fight it and get on with my life.  It took a long time for me to become myself again and about the time I was finally back to normal I had another seizure.  I couldn't believe.  I was seizure free for 10 years!  Now I'm back to where I was before.  I'm miserable.  All I ever think about is "wonder if I'll have another seizure."  Also, any uncontrollable movement on my body freaks me out wheter it's my eye twitching or whatever else.  My boyfriend is a very outgoing person but I'm not because of my seizures.  I don't know how to get my life back.  All I do is worry about it.  It's driving my crazy and making so depressed!  I know I haven't had alot of seizures in my life but they have competely turned my life around.  Please give me some advice on how to get my life back to normal.  Thanks

Comments

RE: how do i get on with my life?

Submitted by mrsrogers on Sun, 2005-07-10 - 20:47
Hey. Well, let me share my story with you. I had my first seizure when I was 12. I am now 25. I grew up feeling a little sheltered through middle and part of high school because of my seizures. My mom always worried and it caused alot of anxiety in me. By the time I was 15 and able to drive, I had found a medication that worked. I was seizure free for years. I went through high school and college almost living normally. Trust me I know the depression that you are talking about. The med worked but made me gain weight so Iwas in college and having no seizures but feeling fat and constantly worrying! I finally met a great guy when I was a junior in college, about 21 and had a seizure the second time I was around him. I was mortified. I was convinced I could never see him again. Worse yet, that he would NEVER want to see me again! I went back to my doctor and they raised my dosage of meds and I was ok but very unstable and depressed, but my boyfriend did not leave me. He still wanted to see me. Long story short...there are people that understand where you are coming from...I recently got married to that guy and my dr decided to change my meds so that we could have a family one day. I had a siezure last weekand now I cant drive. It is making me crazy. I understand your feelings. We can talk more if you want. Email me meg06_98@yahoo.com Dont let yourself get overtaken with this and email me if u want to talk. Meg

RE: how do i get on with my life?

Submitted by mrsrogers on Sun, 2005-07-10 - 20:49
Hey. Well, let me share my story with you. I had my first seizure when I was 12. I am now 25. I grew up feeling a little sheltered through middle and part of high school because of my seizures. My mom always worried and it caused alot of anxiety in me. By the time I was 15 and able to drive, I had found a medication that worked. I was seizure free for years. I went through high school and college almost living normally. Trust me I know the depression that you are talking about. The med worked but made me gain weight so Iwas in college and having no seizures but feeling fat and constantly worrying! I finally met a great guy when I was a junior in college, about 21 and had a seizure the second time I was around him. I was mortified. I was convinced I could never see him again. Worse yet, that he would NEVER want to see me again! I went back to my doctor and they raised my dosage of meds and I was ok but very unstable and depressed, but my boyfriend did not leave me. He still wanted to see me. Long story short...there are people that understand where you are coming from...I recently got married to that guy and my dr decided to change my meds so that we could have a family one day. I had a siezure last weekand now I cant drive. It is making me crazy. I understand your feelings. We can talk more if you want. Email me meg06_98@yahoo.com Dont let yourself get overtaken with this and email me if u want to talk. Meg

RE: how do i get on with my life?

Submitted by misskitty on Mon, 2005-07-11 - 18:58

hi there amanda

i read yor note,i know what u are going through i felt the same way as you did when i was a child,why me? just as i though i was getting on ok with my life i had a fit,and i would be back to sqaure one again feeling all sad and depressed,when i had my fit i was on holiday with my parents,i was 12,and most of my hols was spent in hospital.now i am 30 years old,i amoff my medicatoin now,i was taking epilim,i have been pill free for 7 months now,as me and my partner are trying for a baby,the doctor advised me to come off the epilim for the sake of my baby,and myself as i havent come off my tablets since i was 15,that was the last time i had a fit,my partner is brilliant,he says to me its all in the mind,try not to worry about it,or i will stress myself out and make myself ill,i hope my infomation and advise as helped you,miss kitty.

hi there amanda

i read yor note,i know what u are going through i felt the same way as you did when i was a child,why me? just as i though i was getting on ok with my life i had a fit,and i would be back to sqaure one again feeling all sad and depressed,when i had my fit i was on holiday with my parents,i was 12,and most of my hols was spent in hospital.now i am 30 years old,i amoff my medicatoin now,i was taking epilim,i have been pill free for 7 months now,as me and my partner are trying for a baby,the doctor advised me to come off the epilim for the sake of my baby,and myself as i havent come off my tablets since i was 15,that was the last time i had a fit,my partner is brilliant,he says to me its all in the mind,try not to worry about it,or i will stress myself out and make myself ill,i hope my infomation and advise as helped you,miss kitty.

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