Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

how do i get on with my life?

Wed, 05/25/2005 - 18:47

Topic: Teen Zone

I'm 22 years old and I had my first seizure at the age of 10. I had about 4 seizures from the time I was 10 until I was 12. It took me forever it seems like to get over the fear of seizures. For a while, I would go out. All I wanted to do was sit at home. I knew I had to fight it and get on with my life. It took a long time for me to become myself again and about the time I was finally back to normal I had another seizure. I couldn't believe. I was seizure free for 10 years! Now I'm back to where I was before. I'm miserable. All I ever think about is "wonder if I'll have another seizure." Also, any uncontrollable movement on my body freaks me out wheter it's my eye twitching or whatever else. My boyfriend is a very outgoing person but I'm not because of my seizures. I don't know how to get my life back. All I do is worry about it. It's driving my crazy and making so depressed! I know I haven't had alot of seizures in my life but they have competely turned my life around. Please give me some advice on how to get my life back to normal. Thanks

Comments

RE: how do i get on with my life?

Submitted by TomII20 on Mon, 2005-07-11 - 21:57

My name is TomIIWatkins. I have had a Seizure Disorder since 8/78. When I was born the average baby had 24 months to live. The best thing is to do is not let it get the best of you. I don't know how many you have in a life time. But I was 8 years Seizure free from age 3 to age 11. I was disnoised with a GrandMol Seizure Disorder. Through it all it was not easy but I did manger. But since the spring my Seizures started becoming more a day and a month. If you want to talk more email me at TomII20@yahoo.com.

RE: how do i get on with my life?

Submitted by angel_lts on Tue, 2005-07-12 - 07:07

We can not let life hold us back because of epilepsy. If you do it has won. You have to fight it. I have had it for 36 years and have fought it every step of the way. I am not going to say it is easy. But I had my down days. It would not last long. I would pick myself up and keep going. We dont put epilepsy in front of us. It is our lives and only you can control that.

SOmetimes it is the meds. For I was sitting at one time for a month. I was very depressed. I realized I was not this way before I was on that med. I got off of that med and got a new med.

take care

Lisa

http://health.groups.yahoo.com/group/EpilepsyApproach/

SOmetimes it is the meds. For I was sitting at one time for a month. I was very depressed. I realized I was not this way before I was on that med. I got off of that med and got a new med.

take care

Lisa

http://health.groups.yahoo.com/group/EpilepsyApproach/

RE: RE: how do i get on with my life?

Submitted by nixx on Fri, 2005-07-15 - 18:33

I know exactly what you mean..I've only had 3 seizures my entire life but 3 could easily turn into 4 and then to 5..and then who knows. I can't sleep, I have nightmares about it.. when I go out I try to have fun with friends, drink & have a good time but I know i'm not the same person, theres always that underlying fear.. like walking on eggshells or something..its devastating, I can't get over it either =/

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.