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seizure surgury
Thu, 11/30/2006 - 13:38Topic: Surgery and Devices
I am going to have left temporal lobe surgury in Jan. or Feb. and they are talking about possible removal of my left hippocampus. Has anyone had this removed. If so, how are you doing, what can I expect? I have had a wada, and pet scan already. The surgery will depend on the grid test which will be next. They are to call within a couple of weeks with the scheduled date. I will take any info you can give me. Are you still on meds? are you seizure free? how long since your surgery? p.S I am also a type one diabetic, anyone been in my shoes?
mulleca of Minnesota P.
Comments
Re: (chumtochatwith) how did you
Submitted by chumtochatwith on Mon, 2006-12-04 - 18:57
Well, they also disconnected my pump during the surgery. Afterwards, I had to take a steroid med called decadron or something like that and that in itself made my blood sugars high. This med was necessary though to prevent swelling of the brain. I was in intensive care for two to three days and my husband had to help me with changing my infusion set and testing my blood sugar. My blood sugars probably didn't get back to normal for two to three weeks. But it takes some time for medication to totally leave your system. You will be fine Mulleca. Good luck.
Chumtochatwith
Just one more bit of advice
Submitted by chumtochatwith on Tue, 2006-12-05 - 11:09
Just one more bit of advice mulleca,
Before you go in for your surgery, make sure that your husband or caregiver knows how to change your infusion sets, replace the reservoir, and how to control your pump and glucometer. Also, make sure that they know ahead of time that for the first week or so, you will be in pain and quite medicated so they will have to help you for the first little while to manage your diabetes. While I was in the ICU the nurses took care of my diabetes with mdi but after that once I got into a semiprivate room it was up to hubby. Luckily, I had thought ahead of time to bring along the instruction manual for my pump. My husband is rather savvy so he was able to figure things out but had never done it by himself before. So, if I was to go through this again, I would make sure that he had a better idea how to do this. One other thing, expect to have to deal with nausea. Now for diabetics it is a little more difficult when you are on insulin and end up vomiting so also make sure that your caregiver knows what to do if you end up experiencing as much nausea as I did. I actually found that I could avoid any vomiting by just taking Gravol throughout the day and night. I probably had to do this for three weeks or so after my surgery. Good luck,
Chumtochatwith
Re: Re: (chumtochatwith) how did you
Submitted by aussie2006 on Sat, 2006-12-02 - 06:45
Hi Mulleca, I am Not diabetic, but I did have left temporal lobe lobectoby and partial removal of hippocampus in March this year (2006). I was in hospital 7 days. I came out of the anasthetic very clear minded, knew where I was and recognized visitors and was able to speak when I came out of anasthetic. I was off work 7 weeks and early next year (2007) my neurologist will start slow withdrawal of medications if all is still going well. I will be able to get a drivers licence next year- I've never had one, I am able to do things now that had restrictions before for my safety. Aussie 2006