The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

What is this?

Wed, 06/20/2007 - 11:26
Kaitlyn had another seizure of some sort yesterday. I am not sure what it was, but I am hoping that maybe one of you might have experienced something similar to what she is having so that way I know what it is. She has now had 3 of these episodes. The first 2 I didn't witness, my husband did. I saw the end of the 2nd one and it was almost exactly the same as this one. When I went into her room to wake her from a nap yesterday I found her laying on her stomach with her eyes open and she didn't look right. I went over to her and she was having this little jerks and twitches. Her eyes were jumping around and were dialated. I picked her up and she was limp and then went stiff and then went limp again. I was holding her like a baby across my arms trying to talk to her, and she wouldn't even look in my direction. She would sream for a half a second and then would stop. This went on for about 4-5 minutes and then stopped. After it stopped we sat in the chair and she just sat there, not saying anything, not moving but her eyes were responsive when I would talk to her, still dialated. She just sat there for another 25 minutes. Finally 30 minutes after I found her, she got up out of no where and was playing again. She acted like she was out of sorts for the rest of the evening. She was irratable and grouchy. The first time that this happened, she had a long day and took a late nap. The second time I don't think there was anything really going on. Yesterday she had woken up early, went to bed late the night before and then took an extremely long nap. She normally takes a hour nap, and yesterday it was about 2 1/2 almost 3 hour nap. I don't know how long she was like this before I went in there. Anyone know what this is?? Thanks! Emily

Comments

Re: What is this?

Submitted by mrsvogt on Sat, 2008-12-20 - 16:07
I hope this message reaches you seeing as it's been about a year since you posted it.I am from Oklahoma and my 5 year old daughter has seizures.She has had an EEG that came back with bad results and her Dr. suggested KEPPRA for 2 years then a follow up EEG.I need more information than that.I would like to know how to get ahold of a pedeatric neurologist in Oklahoma.I saw that you know of a good one in OKC and would like to get some information from you.Thank you for your help.It's been 1 year and I would like to know what's going on and if we should wait another year or what.I'm sure you can understand the need for more information.You or anyone who has info can reach me at mrsvogt@hughes.net

Re: What is this?

Submitted by Stéphanie Marcoux on Fri, 2007-06-22 - 23:13
Emily, I join here a copy of a posting I wrote under misdiagnosed epilepsy, just in case you didn't read it: I'm posting to prevent misdiagnosed epilepsy. Too many children, even adults, are treated many years for misdiagnosed epilepsy, when in fact, they suffer of low blood sugar (severe hypoglycemia) due to hyperinsulinism (HI). Low blood sugar causes seizures. An easy way to know if the seizures are caused by low blood sugar is to use a glucometer and test the blood sugar after a fasting period (for example after a night sleep, before eating; at least, after a 3-4 hours fasting). Usually, during a seizure, the blood sugar rises, so, testing it during a seizure is unconclusive. Low blood sugar due to HI can eventually cause brain dammage and death. This is a rare condition, most neurologists don't know about. My 20 m.o. son has it and I've met people who unfortunately received late diagnosis. So, if the seizures seem to occur mostly at night or after a fast of a few hours, according to my knowledge of HI, taking a blood sugar level should be considered. If you have any question about HI, I'll be pleased to answer to you. Best regards, Stephanie Marcoux

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.