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Seizures changing does that happen???
Sat, 09/30/2006 - 23:05Comments
Re: Seizures changing does that happen???
Submitted by DJsMom on Tue, 2006-10-03 - 21:36
Re: Seizures changing does that happen???
Submitted by txrhb1 on Tue, 2006-10-03 - 23:25
Hi Kari, Like you, I would be very concerned if this was happening to Jessie. I would suggest either finding a new doctor, or insisting that the current one run some blood level tests and take a look at her himself. He needs to provide you with more of an answer than "oh, it's ok, it will get better" ! Not an acceptable answer to a worried parent. ((( hugs ))), Barbie _________________________________________________________________ Raise money for your favorite charity or school just by searching the Internet with GoodSearch- www.goodsearch.com - powered by Yahoo
Hi Kari, Like you, I would be very concerned if this was happening to Jessie. I would suggest either finding a new doctor, or insisting that the current one run some blood level tests and take a look at her himself. He needs to provide you with more of an answer than "oh, it's ok, it will get better" ! Not an acceptable answer to a worried parent. ((( hugs ))), Barbie _________________________________________________________________ Raise money for your favorite charity or school just by searching the Internet with GoodSearch- www.goodsearch.com - powered by Yahoo
Hi Kari.. I had seizures
Submitted by solis on Sun, 2006-10-01 - 00:42
Hi Kari.. I had seizures since I was three (that was long ago and there were very few meds back then) so let me try and share some of the info I learned through the decades. The first thing I'd ask (politely) is if you take your daughter to a neurologist or an epileptologist. There is a huge difference.. epileptologists are neurologists that focus directly on (and have advanced education in) epilepsy whereas neurologists treat all brain and spinal cord problems. I saw neurologists all my life, but it wasn't until I was sent to an epileptologist that I got controlled (with meds that had been on the market for years). Had I known such a thing as epileptologists existed, I'd have wanted one decades before. My guess is you are seeing a neurologist: "Diazepam was first used in the United States in 1968. The pill form (best known by the brand name Valium, but also available in many generic forms) is too slowly absorbed when taken by mouth to be used to stop a seizure, and is only moderately effective against epilepsy." http://www.epilepsy.com/medications/i_diastat_intro.html "An important concern when people with epilepsy take benzodiazepines regularly is the risk that seizures will become more frequent or more severe if the medicine is reduced or stopped. Tolerance, the need for higher doses to achieve the same effect, is also a common problem. But since Diastat is not used regularly, issues of withdrawal and tolerance are much less likely to arise than with medications that are used every day." http://www.epilepsy.com/medications/i_diastat_serious.htm Note.. Diastat (Valium) is not intened for use every day. (epilepsy.com is made by physicians so the info there is accurate) Friend, if your Dr is 'content', despite what is happening to your daughter, I'd (politely) suggest you find a new one. Since I was 20, I went through over 12 physicians before I met the epileptologist and got controlled. I wish you and your daughter the very best.. ~sol