Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
over protective mother
Fri, 04/20/2007 - 11:30Topic: Parents & Caregivers
Any advise as I am new to this as to how not to become an over protective mother to my 10 year old with epilepsy? I seem to worry all the time about her though mostly I TRY NOT TO SHOW IT. DO YOU GET MORE RELAXED AS TIME GOES BY.SHE HASNT HAD A SEIZURE FOR A FEW MONTHS NOW BUT I AM ON EDGE JUST WAITING FOR IT TO HAPPEN - SHE HAS GRAND MAL SEIZURES AND IT IS REALLY SCARY.
Comments
Re: Re: Re: over protective mother
Submitted by jmccand on Mon, 2007-04-23 - 08:36
The website is www.medicalert.org You provide all the needed information, such as contact people, doctors, medication, and diagnosis. If an emergency should occur the medics call the 1-800 number on the bracelet/necklace, and give medicalert the ID#. The emergency personel are given all of that information. Medic alert decides based on the information you give them what to put on the back. In my daughters case it says "seizure disorder, mitral valve prolapse". I like the fact that if I am not around they can have all emergency contact information, including her doctors and what medications she is on.
Lori
Re: Re: Re: over protective mother
Submitted by codybugsmom on Mon, 2007-04-23 - 08:42
On my son's I have engraved: Epilepsy, Takes Tegretol and Hemiparesis. They are small and don't give much room so I made it as short as possible.
Jenn
Re: Re: over protective mother
Submitted by Christine1968 on Mon, 2007-04-23 - 08:23
What do you have engraved on the medic alert necklace? I am getting one for my son and I am not sure how much information to put on it. Thanks. Chris