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has anyone noticed developmental delays with there child on phenobarbital???
Wed, 09/05/2007 - 21:58Topic: Parents & Caregivers
My daughter will be 2 at the end of the month and she has been on phenobarb since she was nine days old. She started a drug called topamax about 2 months ago and she started doing so good that the docs started to decrease her phenobarb. The first full day of the decrease you could see a difference. She was smiling and laughing. She started to try to roll over on her own. Two weeks later they decrease the phenobarb again and told us that phenobarb is proven to cause delays in children. She now grabs for toys which she never did before. I was just wondering if anyone else had the same problem. And i wanted to give a heads up to the parents that have there children on the drug.
katie
Comments
Re: has anyone noticed developmental delays with there c
Submitted by zeldacpt on Wed, 2008-01-30 - 13:46
My granddaughter, Secara, has not smiled or cooed since being put on pheno. They added keppra, but she is still having up to 6 tonic-clonic seizures a day. We see the neuro tomorrow and after reading this, I will deffinately try to get her meds changed. She has partial ACC, so we thought it might be the cause. Thanks, Eileen (grandma to Secara)
Re: has anyone noticed developmental delays with there child on
Submitted by matthewsmommy on Tue, 2007-10-23 - 10:22
My son took phenobarb for only 5 months and it was an awful drug. While he didn't have any delays with it, he was very hyperactive and inattentive. Once he came off of it, he's been a different child.
Re: Re: Re: has anyone noticed developmental delays with there c
Submitted by Morganjamie on Thu, 2007-10-25 - 22:38
Morgan was a little under 2 years old when they started taking her off of the pheno. She had been on it since she was 9 days old. She's a totally different child now. She's still on a quarter of a pill 2 times a day, but since she has been decreased she has made some big strides!! Katie (Morgan's mom)