Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

has anyone noticed developmental delays with there child on phenobarbital???

Wed, 09/05/2007 - 21:58
My daughter will be 2 at the end of the month and she has been on phenobarb since she was nine days old. She started a drug called topamax about 2 months ago and she started doing so good that the docs started to decrease her phenobarb. The first full day of the decrease you could see a difference. She was smiling and laughing. She started to try to roll over on her own. Two weeks later they decrease the phenobarb again and told us that phenobarb is proven to cause delays in children. She now grabs for toys which she never did before. I was just wondering if anyone else had the same problem. And i wanted to give a heads up to the parents that have there children on the drug. katie

Comments

My son is 10 months old and

Submitted by MummaKoi on Wed, 2018-01-03 - 06:39
My son is 10 months old and currently on Clobazam 1/2 tablet day and night Keppra 2.5ml dau and night Topamax 1/4 day and 1 whole tablet at night he has been onthis for 3 weeks He now arches his back and head so bad when he stands or is sitting. He gets vey very agitated and angry He bites on things to relieve tension and he also is very floppy when you pick him up or try making him stand. Oh he also jerks He had a seizure 2 weeks ago thats when he was talking the keppra and clobozam the same just the topomax 1/2 morning and night I know your not a doctor but do u think these are side effects? Should I let my doctors know this? Your advise would be much appreciated Yours kindly

Re: has anyone noticed developmental delays with there child on

Submitted by dtsecofr21 on Thu, 2007-09-06 - 09:40
I took phenobarb between 8-13 years old. Although my life was at a different developmental stage, I stopped getting upset with everything after I was put on different meds. I believe that Phenobarb gave me a short fuse which went away after my experience with it. She sure is one little cutie. Good luck and God bless. Doug

Re: Re: has anyone noticed developmental delays with there child

Submitted by sushina on Sat, 2007-10-20 - 21:14
HOW OLD WAS YOUR DAUGHTER WHEN YOU STARTED TAMPERING HER OFF PHENO?

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.