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do you tell your children's friends/parents?
Tue, 08/14/2007 - 22:42Topic: Parents & Caregivers
We were told by our son's doctor to tell his teachers and anyone that he may be spending a lot of time with--so they would not think it was something else and do or not do something that might hurt him. We told one of our son's friends parents--who asked if they could tell their son--we said yes. Unfortunately, this friend is a little different and hyper. He has at different times mimicked a seizure or talked to our son in a bad way. He did this in the car one time and scared my husband, who yelled at him and said don't do that ever again. He has another friend that he has spent a lot of time with this summer. At this point, we have not discussed it with his mother and wonder if we should.
Comments
Re: do you tell your children's friends/parents?
Submitted by NoEsFacil on Wed, 2007-08-15 - 20:51
Hi,
My daughter is 11yo and has been diagnosed for 2 years. We live in a very small rural town where most everyone knows everyone else. I pretty much tell everyone who has any contact with Molly. And for the most part it has been a positive experience for her. I have made "Seizure Action Plans" for school, sports and family/friends. I found them here on this website when I was looking into info about "away" camp. These have been a wonderful tool and everyone who has been given a copy has said that if was helpful for them to know what to do if something were to happen. I'll look around and see if I can find the sample action plan and then post the link to it.
Best wishes,
d
I'm Molly's Mom and Proud of It!
Re: Re: do you tell your children's friends/parents?
Submitted by NoEsFacil on Thu, 2007-08-16 - 12:16
Here is the link for the seizure action plan...
http://epilepsyfoundationmn.org/vertical/Sites/%7BD93436E6-6C83-45D8-A9D6-2AD537C14D12%7D/uploads/%7B8DA87842-01AF-4132-B2E5-1634A9BF4861%7D.PDF
I'm Molly's Mom and Proud of It!
Re: Re: do you tell your children's friends/parents?
Submitted by healinghope on Wed, 2007-08-15 - 10:05
I really appreciate your reply and I believe you are right on about being more comfortable with it. Kudos to your parents as well, for obviously helping you deal with this in a healthy and positive manner. That is a lot of the reason I am so glad I found this site--it helps me learn how to deal with it in a more balanced, positive way. After his most recent seizure, I was ready to pull my hair out, because of his attitude. We just found out last year, and at first, it is a huge shock, you don't know what is happening and what to do. I keep hoping and praying there will be no more. As I have said before, our doc told us the idea is to get him seizure free for 2 years, because then he is less likely to have more. Though the more I read, the more I wonder, but I will continue to hope and pray. Do you still have seizures?