Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

do you tell your children's friends/parents?

Tue, 08/14/2007 - 22:42
We were told by our son's doctor to tell his teachers and anyone that he may be spending a lot of time with--so they would not think it was something else and do or not do something that might hurt him. We told one of our son's friends parents--who asked if they could tell their son--we said yes. Unfortunately, this friend is a little different and hyper. He has at different times mimicked a seizure or talked to our son in a bad way. He did this in the car one time and scared my husband, who yelled at him and said don't do that ever again. He has another friend that he has spent a lot of time with this summer. At this point, we have not discussed it with his mother and wonder if we should.

Comments

Re: do you tell your children's friends/parents?

Submitted by mjcolenc on Wed, 2007-08-15 - 08:05
My son's teachers were told at the end of school last year in May when my son first had a grand mal, and my son's main teacher addressed the whole class about my son, and said they were to watch out for him. Today I am going to meet all new teachers, and they will have to be told also. As for my sons friends and their parents, they know. He only has 2 friends that live near us and perhaps they are an exception. One himself has Epilepsy and the other one has a younger brother who has a physical disability. I guess we were lucky that no one has made fun of him.

Re: Re: do you tell your children's friends/parents?

Submitted by healinghope on Wed, 2007-08-15 - 09:52
My son had his first grand mal seizure in May of 7th grade--I was homeschooling him at the time. He entered public school in 8th grade. I think he would have been horrified, if the whole class would have been addressed--although, he seems to be getting a little more "comfortable" with it--maybe?? But, I'm glad it worked out with your son. It must have been handled very well by the teacher. Actually, when we saw the first grand mal and took him to the hospital (not having any idea what was happening) and we told our son afterward--he had a very hard time believing us. He actually thought we made it up so that we could tell him not to eat or drink so much junk food. (We had been in another state, at a relatives, and he had bought Arizona Tea and 3 other highly caffeniated drinks and some snacks to eat along the way--against my better wishes--but as I said my husband is a little more lenient, and I suppose we balance each other out in that way--I am much more concerned with eating habits). Sorry, I'm rambling, but it was very hard for him to believe. Thanks.

Re: do you tell your children's friends/parents?

Submitted by GodivaGirl on Wed, 2007-08-15 - 09:32
Hi, While I'm not a parent, I'm a 33 yr old person who has been epileptic since age 5 - absence and complex partial seizures. My teachers were always told by my parents in the grades they needed to know (K-8), for high school, you fill out a medical form that all teachers get a copy of, so they're made aware that way. Thing is, growing up I was a sports kid - baseball, ringette, swimming, skiing & tennis being the main ones. My parents always made coaches aware. For baseball my dad was my coach. For the other ones, he'd make coaches aware & at least one of my parents would be there. As far as telling my friends - in my younger grades, I can remember my friends thinking I was prone to day dreams that lead to killer headaches (absence seizures were more common for me then). Keep in mind the age bracket your explaining it to. High school I'd just tell people I had epileptic seizures. Now if I'm out with people I tell them I make a crappy designated driver because these seizure things mean I can't drink or drive. And now, I'm always like "I don't have those Hollywood type seizures like in Exorcism of Emily Rose or anything..." that's so wrong, I just drift out on ya for a bit & hmmm...I might be a bit edgy & fidgety in there. Just stay calm, ask easy questions & life is all good before you know it! I think people panic more, the more you tend to explain things in a way that's going to make them a bit freaked. And it's probably a good thing if you can start to tell people in a reasonably calm way now, so it's accepted by people because as your kids get older they'll have to come up with ways to tell friends, co-workers, possible employers & it isn't always easy, but it's something that can & has to be done in life. I always find the more I make people feel comfortable about the situation & just sorta say well, yeah just incase.... Actually, growing up in the same city throughout my school years, I really only had one major seizure at school (more absence ones). Thing is, that major seizure 10 minutes before my OAC English Final. It was my friends that knew what to do more than teachers, because friends & I grew up together. So you never know, as your son gets older friends will be a great support network in many ways. Just some thoughts to consider. Good Luck :) Erin / Godiva.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.