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3 month old with seizures
Wed, 01/17/2007 - 16:01Topic: Parents & Caregivers
I am new to the website and have really learned a lot in just a few days.
My daughter is 3 months old and was recently diagnoised with a seizure disorder. She has been having 8-15 grand mal seizures a day. We are currently on Phenobarb and Keppra. We are currently in the process of scheduling an appointment with an Epileptologist. She is so young that some of the new medication has not been approved for infants her age. Keppra is one of those drugs, but they have found that it works great in older kids.
The past 2 weeks have been constant seizures throughout the day. The past few days she has had only facial twitches. Does this mean the medication is working, but need to adjust it to get those to stop? She is also really tired and not wanting to eat. I have also found that her diaper in the morning is hardly wet ( I expect for it to be soaked after 8-10 hours), is this normal?
So many questions to answer? Praying daily for her and other families because this is so scary.
JBishop
Comments
Re: Re: Re: Re: 3 month old with seizures
Submitted by JBishop on Wed, 2007-08-15 - 10:40
My daughter is now 10 months old and has been seizure free for 7 months. She is still on the keppra 1.5 2x/day and liquid topamax 6.4 2x/day. She got off the pheno at about 4 months old with no breakthroughs. My daughter did not hold her head up really good until 5 months and she is delayed about 2 months in gross motor skills. She is on track for fine motor. My advice is to continue tummy time. I am a therapist and I found this to be very beneficial. She also had therapy for about 2 months, which really helped with her neglect. You wouldn't even know she had a preference now.
Are you on the liquid topamax or the sprinkles? Are the seizures controlled now?
My prayers are with you. I know that it is so difficult to go through that.
JBishop
jbishop- no seizures are
Submitted by janellesmom on Thu, 2007-08-16 - 03:38
jbishop-
no seizures are not controlled but have slow down alot since toppamax was introduced now she is ranging 10-15 sz a day
today is day 4, how long before the med. started to make improvements?
she is taking 1 pill twice a day 25mg. pheno 4.5mls twice daily keppra 2ml's twice daily do you think your baby was born this way? do the doctors know why she started having seizures was there a diagnosis?
Re: Re: Re: 3 month old with seizures
Submitted by janellesmom on Sat, 2007-08-04 - 07:31
Jbishop- i'm in the same situation today that you where in 5 months ago i'm very curious about what your results where?? my daughter just started the topamax she is also taking pheno and keppra she also has clusters lasting several min. and having 20 or so a day she will be 3 months the 8th she is not holding her head up or smiling was your babie the same? when giving the toppamax was there any difference in the motorskills?? i'm so glad i can relate to someone who has been in the same situation i can;t wait for a respond