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New and Confused

Thu, 05/11/2006 - 20:48
Hello-My son who is now five started having episodes at 3 and a half. The first time it happened it was about 5:30 a.m. He woke me and asked for some milk. I gave him a drink and then laid down with him to make sure he went back to sleep for a little while. About 20 min later he started to wet the bed. I tried to wake him but all I saw was his eyes wide open and staring off to the left. I called to my husband and he tried to wake him. He then started to make a wretching sound like he was going to vomit. I ran to get a bucket and when I got halfway across the house, my husband yelled to call 911. We live a block from the fire dept thank goodness, they were there withing minutes. They could not wake him, however he did cry when they did a glucose stick. They put him into the ambulance and one paramedic was with him and I in the back. Before we left he asked the other paramedic to come back and have a fireman from the firetruck drive (Where we live a firetruck usually accompanies an ambulance on medical calls) I asked what was going on and he said that his heart rate was dropping. I looked at the monitor and his heart rate was 30. I didn't get to see the monitor anymore after that because they moved it from my view. The 1st paramedic told the second one "Everytime his heart rate drops he goes out on me" After we arrived at the hospital and had a series of tests, it was determined that he had had a seizure. By the way he also got sick and quit breathing three times in the ER. He finally came around about four hours later and was just fine. We had an eeg the next day that was normal. Since December of 04 he has had six of these episodes. The second one didnt happen for nine months and then two more three months after that and three more this past February. Pediatrician and Neuro thinks this may be a cardiac problem. Cardiac didnt think so at first, but since that time they have noticed that on ekgs and event monitors that he is missing a beat. I have also read alot about the Panayiotopoulos Syndrome (Benign Epilepsy) which seems to fit everything that has happened too. I am so confused. I don't whether to scratch my watch or wind my head! If anyone has any experiences like this the advice would be greatly appreciated. Thank you so much

Comments

Re: Re: Re: Re: Re: New and Confused

Submitted by ekoorb on Sun, 2006-10-01 - 21:14
Hi. I am glad you found my response. Have you seen an E specialist to figure out if it is either BOCE or BRE? I am glad the information helped you. Based on some of the threads I have read, it amazes me how some of these doctors have missed the diagnosis. I really hope you find your answers. We do not have the obsessive issues you mentioned. I am not familiar with that but that does not mean it is not part of the syndrome- I just don't know. I will look at Dr. Panayiotopolous's report to see if anything is mentioned. Are all his seizures in sleep? Is he on any meds? I am sorry that happened with the EEG- you must have been so annoyed but hopefully the next one will work and will give you some answers. Please keep in touch.

Eye movement as if looking but no response

Submitted by vvskourlife on Fri, 2019-02-22 - 07:39
I know this is an old post but wondering if any of your kids had eye moving as if they were looking but could not respond. My son woke us trying to vomit and then blank stare but remember that his eyes had movement. I know it is very specific but want to make sure what he had was this.

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