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New and Confused

Thu, 05/11/2006 - 20:48
Hello-My son who is now five started having episodes at 3 and a half. The first time it happened it was about 5:30 a.m. He woke me and asked for some milk. I gave him a drink and then laid down with him to make sure he went back to sleep for a little while. About 20 min later he started to wet the bed. I tried to wake him but all I saw was his eyes wide open and staring off to the left. I called to my husband and he tried to wake him. He then started to make a wretching sound like he was going to vomit. I ran to get a bucket and when I got halfway across the house, my husband yelled to call 911. We live a block from the fire dept thank goodness, they were there withing minutes. They could not wake him, however he did cry when they did a glucose stick. They put him into the ambulance and one paramedic was with him and I in the back. Before we left he asked the other paramedic to come back and have a fireman from the firetruck drive (Where we live a firetruck usually accompanies an ambulance on medical calls) I asked what was going on and he said that his heart rate was dropping. I looked at the monitor and his heart rate was 30. I didn't get to see the monitor anymore after that because they moved it from my view. The 1st paramedic told the second one "Everytime his heart rate drops he goes out on me" After we arrived at the hospital and had a series of tests, it was determined that he had had a seizure. By the way he also got sick and quit breathing three times in the ER. He finally came around about four hours later and was just fine. We had an eeg the next day that was normal. Since December of 04 he has had six of these episodes. The second one didnt happen for nine months and then two more three months after that and three more this past February. Pediatrician and Neuro thinks this may be a cardiac problem. Cardiac didnt think so at first, but since that time they have noticed that on ekgs and event monitors that he is missing a beat. I have also read alot about the Panayiotopoulos Syndrome (Benign Epilepsy) which seems to fit everything that has happened too. I am so confused. I don't whether to scratch my watch or wind my head! If anyone has any experiences like this the advice would be greatly appreciated. Thank you so much

Comments

Re: Re: Re: Re: Re: Re: Re: New and Confused

Submitted by colelu on Thu, 2006-06-01 - 15:47
Thanks for the feedback, I was so discouraged yesterday. I attempted to email you yesterday but your account does not currently accept emails. I would really like to chat with you because are childrens cases are so similiar. I'm in CA but available to chat on the form anytime.

Re: Re: Re: Re: Re: Re: Re: Re: New and Confused

Submitted by ekoorb on Thu, 2006-06-01 - 15:59
I see you are on line right now but I have both kids home right now so it will be tough. I am in the Chicago area so I am two hours later than you. If you pick this up right now, I have a little time otherwise we could talk some time later tonight. Write a time and I will check this later. We are going out to dinner and probably will be home around 7:30 Chicago time. I am sorry you were discouraged yesterday but it really does sound like you are on the right track. Once I got the right doctor, I felt so much more in control. Ironically the doctor I can't stand (Horrible bedside) is the one who put her on Topomax. She has finally adjusted to it. But my new doc is so great and I know you can find one that suites your needs. I really hope you can find a new one soon.

Re: Re: Re: Re: Re: Re: Re: Re: Re: New and Confused

Submitted by colelu on Thu, 2006-06-01 - 19:25
How about 10:00 pm for you and 8:00 pm for me.

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