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New and Confused

Thu, 05/11/2006 - 20:48
Hello-My son who is now five started having episodes at 3 and a half. The first time it happened it was about 5:30 a.m. He woke me and asked for some milk. I gave him a drink and then laid down with him to make sure he went back to sleep for a little while. About 20 min later he started to wet the bed. I tried to wake him but all I saw was his eyes wide open and staring off to the left. I called to my husband and he tried to wake him. He then started to make a wretching sound like he was going to vomit. I ran to get a bucket and when I got halfway across the house, my husband yelled to call 911. We live a block from the fire dept thank goodness, they were there withing minutes. They could not wake him, however he did cry when they did a glucose stick. They put him into the ambulance and one paramedic was with him and I in the back. Before we left he asked the other paramedic to come back and have a fireman from the firetruck drive (Where we live a firetruck usually accompanies an ambulance on medical calls) I asked what was going on and he said that his heart rate was dropping. I looked at the monitor and his heart rate was 30. I didn't get to see the monitor anymore after that because they moved it from my view. The 1st paramedic told the second one "Everytime his heart rate drops he goes out on me" After we arrived at the hospital and had a series of tests, it was determined that he had had a seizure. By the way he also got sick and quit breathing three times in the ER. He finally came around about four hours later and was just fine. We had an eeg the next day that was normal. Since December of 04 he has had six of these episodes. The second one didnt happen for nine months and then two more three months after that and three more this past February. Pediatrician and Neuro thinks this may be a cardiac problem. Cardiac didnt think so at first, but since that time they have noticed that on ekgs and event monitors that he is missing a beat. I have also read alot about the Panayiotopoulos Syndrome (Benign Epilepsy) which seems to fit everything that has happened too. I am so confused. I don't whether to scratch my watch or wind my head! If anyone has any experiences like this the advice would be greatly appreciated. Thank you so much

Comments

Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: New and Conf

Submitted by ekoorb on Thu, 2006-06-01 - 22:48
I am on the computer now if you are still here. Go to chat if possible.

Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: New and

Submitted by ekoorb on Tue, 2006-06-06 - 22:01
Hey I just wanted to see how things were going. Sorry again about the problem I had last week with my computer. If you want to set up another time, please let me know. In the meantime, I hope your child is doing ok. Take care.

Re: Re: Re: Re: Re: New and Confused

Submitted by traceya on Fri, 2006-09-15 - 10:38
My son has had 4 seizures exactly like you describe-each time there is coughing -gagging-vomiting. He then stares upwards for a time-the first one he lost oxygen and an ambulance came and administered the mask and a iv-he then was fine-we did a sleep deprived eeg-there machine broke-have to do again-The nuerologist does not seem to have any answers to this yet-but hearing that others have has the vomiting before-now I know there is some connection(always out mof a sleep too.) He is 6 now-he also has a bad allergy cough a lot-he is on zirtec-I wonder if the cough and phlemn cause him to gag out of sleeo and lead to the seizure? He just had another at 7 this morning-he does not remember it happening.

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