Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Welcome to My Epilepsy Diary!
Sat, 10/31/2009 - 07:53Hi everyone!
I hope you've had the chance to try out the new and revised My EpilepsyDiary. I hope you find it as easy to use as I do. There's a new video on the home page that will show you how to get started, as well as a detailed help section. We hope these help you get started with your own diary - create one to help monitor and track your own epilepsy. If you're a parent or other caregiver you can start one for your loved one with seizures! If you run into any problems and need some live help - send an email to - webmaster@epilepsytherapyproject.org or patty@epilepsytherapyproject.org. Or post questions or concerns right here. I'll be checking this frequently and will get right back to you.
We welcome all feedback - what's working well, what's not, and what you'd like to see in the future. The Diary was created for you, so please let us know how you feel.
We look forward to hearing from you and don't forget - Take Control!
Best wishes,
Epi_help
Resource Specialist
patty@epilepsytherapyproject.org
Comments
Re: Welcome to My Epilepsy Diary!
Submitted by thebettles on Sat, 2011-02-05 - 03:40
Thank you very much for responding.
marty
Thank you very much for responding.
marty
Re: Welcome to My Epilepsy Diary!
Submitted by Anonymous on Sun, 2011-01-23 - 19:37
Hi Marty, Sorry I couldn't respond right away but I'm catching up right now. Data is not attached to any personal identifiable information in the diary. A computer program assigns a number to an account. When data is looked at for a specific reason, only groups of data are looked at, not individual accounts or numbers. One is not able to follow one diary over time or even look in detail at one account. I hope this answers some of your questions. If you'd like to talk to someone in more depth, please contact webmaster@epilepsytherapyproject.org and ask for Kim or myself. Best wishes, Epi_help Resource Specialist