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Untreated Partial Seizures of TLE
Sat, 03/28/2009 - 23:59Is there any information about people with simple partials who don't undergo AED treatment?
Not being flippant here but seriously....what happens?
The side-effects of all the meds seem horrifying, and I don't lose consciousness,
Is epilepsy progressive?
Do these little seizures cause brain damage?
Comments
Re: Untreated Partial Seizures of TLE
Submitted by wldhrt13 on Mon, 2009-03-30 - 00:59
wonder,
i am going through the same sort of thing. i think sometimes maybe nothing will happen. i am in a bit of a different position in that, i haven't had any generalization. so I wonder if I should take the pills. can a few sharp waves from my temporal lobe and some slowing mean that I have a seizure disorder, even though the latest one looked okay. the one where i had abnomality came from a sleep deprived study, wouldnt anyone have wonky things appear with a sleep deprived EEG?
so frustrated, so scared, so confused about all of this.
i am seriously afraid that if I take the AED that my IQ will drop, all the data says that cognitive impairment from the medicine is bound to happen. i don't want to become dumb! how would I be able to work? right now I have these sudden rageful outbursts, and bad tastes, and spiritual "experiences" that i actually like, but overall I am still the same old me.
i know i am rambling but i am just so messed up over all this
wonder,
i am going through the same sort of thing. i think sometimes maybe nothing will happen. i am in a bit of a different position in that, i haven't had any generalization. so I wonder if I should take the pills. can a few sharp waves from my temporal lobe and some slowing mean that I have a seizure disorder, even though the latest one looked okay. the one where i had abnomality came from a sleep deprived study, wouldnt anyone have wonky things appear with a sleep deprived EEG?
so frustrated, so scared, so confused about all of this.
i am seriously afraid that if I take the AED that my IQ will drop, all the data says that cognitive impairment from the medicine is bound to happen. i don't want to become dumb! how would I be able to work? right now I have these sudden rageful outbursts, and bad tastes, and spiritual "experiences" that i actually like, but overall I am still the same old me.
i know i am rambling but i am just so messed up over all this
Re: Untreated Partial Seizures of TLE
Submitted by wonderwoman on Sun, 2009-03-29 - 19:50
I have been wondering the same thing. After four years of treatment with six diff. meds, I am feeling like it was easier when I just didn't know I had TLE. Have been considering going off AEDs and trying the ketogenic diet, just because the side effects and drug reactions have been so severe. I know this is probably not ideal, but I feel I cannot trust my neuro to be honest with me about the effects of these meds on my body, and want to prevent any more problems. I have only ever lost consciousness once, for about 10-20 secs, in a generalised seizure, which led to diagnosis. Apart from that one time four years ago, all my seizures are partial de ja vu, conscious throughout. Not fun, but I managed before when I just thought they were panic attacks. Is it irresponsible to try life without AEDs, if I don't drive? WW