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Untreated Partial Seizures of TLE

Sat, 03/28/2009 - 23:59

Is there any information about people with simple partials who don't undergo AED treatment? 

Not being flippant here but seriously....what happens?

The side-effects of all the meds seem horrifying, and I don't lose consciousness,

Is epilepsy progressive?

Do these little seizures cause brain damage?

Comments

I to have noticed the past 6

Submitted by GazJ on Thu, 2017-11-02 - 23:43
I to have noticed the past 6 months things seem to be getting worse for me but what made it hit home was a friend picked up I slurred for like 10 seconds went glassy eyed then snapped back to normal this is when I decided to pay attention and here are some things I noticedDepth perception like pouring milk into a glass I'd sometimes miss the glass slightly Smells that only I smell Butterflies leading to higher heart rate then what I call dazingMemory problemsSudden anger thats hard to lose but can go just as quick sometimesAnd im not sure its related but shaky hands at timesSlurring words or finding words hard to sayAlso keeping concentration is harder n harder And stressful situations makes me want to get out of there asap so guess thats anxiety kicking inI must also add I dont take medication I do feel alot better though after I smoke marijuana im not advising anyone should try it its not what im saying but for me it helps but only in some circumstances for me 

In 2006 for a whole year I

Submitted by Bibariba on Fri, 2018-10-12 - 14:03
In 2006 for a whole year I experienced recurring feelings of deja vue. They would come over me while I could be doing anything - cooking, in the bath, watching TV etc. I would suddenly try to remember a fleeting memory but could never really grasp it, and seconds into this I'd feel an overwhelming emotion, as though I wanted to cry, and sometimes nausea. After a couple of minutes or even less, it would pass and everything was back to normal.  While it was happening I couldn't do anything else as I was 'inside my mind' and so focused on trying to recapture the memory. These episodes had no pattern so I couldn't say they were stress or hormone related and I wasn't depressed. I didn't go to the doctor's as they were intermittent and didn't cause pain or become more intense. I also didn't know how to describe them and thought people would just say they also had deja vue's and wouldn't understand the other feelings I was having. After approximately a year they stopped. So no medication and no surgery. I do feel I've lost chunks of my memory but then again perhaps I just can't remember everything like most people. I looked for information anout my symptoms in 2006 and couldn't find anything so was very relieved to find the description on this website recently. I was 47 when I had the episodes. Whether it was because I was coming up to menopause I don't know. I'd always had horrendous PMS since my teens, and also during my teens and early 20s severe migraines attached to my menstrual cycle.  I was relieved to hit menopause and welcomed it with open arms because the PMS and bad migraines stopped abruptly!  I occasionally get the flashing lights but no headaches now.  Maybe all these things are linked, but if the TLE returns at least I now know the symptoms are recognised and will seek help if they become a problem. 

Even though this is an older

Submitted by jonsongs on Wed, 2019-07-17 - 19:05
Even though this is an older post, I can tell you of my personal experience of untreated seizures. I went undiagnosed and untreated for 52 years with what are now call Focal Onset Aware Mesial Temporal Lobe Seizures. Like you I used to think they were "little" because I didn't blackout and convulse and I just called them my "weird spells." These spells would flare up from time to time and then I started having multiple clusters totally over 300 seizures per year by my late 50s. By the time I finally got my primary Dr. to believe me and was referred to a neurologist I had started suffering both long-term and short-term memory loss. Bits of my memory, events etc., started disappearing especially around the time of my clusters, and I was often exhausted and had slowed thinking. I was a mess. Even though my MRI and EEG were normal my neuro still suspected TLE and put me on an AED drug trial which immediately decreased the seizures. After trying a second medication (generic Keppra) my seizures went from about 30 per month to none! Now at 7 months seizure free my short-term memory has improved substantially and I'm feeling like a new person, although I was warned the long-term memories will likely not come back. My neuro explained that my seizures occur in the same area that memory is processed and can be just as hard on memory as the tonic clonic seizures. I decided I don't want to risk further memory loss especially at age 65. What you do is your business, but I hope at least you are under the care of a good neurologist. Yes, the Keppra makes me sleepy, but that's a small price to pay to be a functional person again and reduce the risk of further damage to my memory and cognition, and let's not forget that as long as I'm having seizures I'm also increasing my chances of SUDEP. I wish you good health.

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