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Topamax- what kind of side effects do you experience?

Tue, 10/10/2006 - 12:16
hi i have been on topamax for over a month now and i was just wondering what kind of side effects do you experience while on topamax? jenn

Comments

STONES

Submitted by macbth on Wed, 2008-01-02 - 18:17

same here - KIDNEY STONES

The 5th time I had them I went off Topamax. Topa really help with my seizures. Sorry I had to go off Topa. Kidney Stones have a lot-lot of pain .

same here - KIDNEY STONES

The 5th time I had them I went off Topamax. Topa really help with my seizures. Sorry I had to go off Topa. Kidney Stones have a lot-lot of pain .

Re: Topamax- what kind of side effects do you experience?

Submitted by MIKEEEE on Wed, 2006-10-11 - 08:37
Hi shygirl, I was hoping to see some responses but I guess I am the first. I am sorry to say that I made my doctor take me off Topamax after being on it for about 3 months. At first I thought it was great. It put me to sleep at night and I slept well for a while. But then, even with increassed dosages, it seemed to stop working. I was getting bad headaches (which now I think was from dehydration) as well as loss of memory, bad fatigue and that just added to my stress. I have a very stressful job and this was making things worse.When I had 3-4 sleepless nights in a row I called my doctor and told him to take me off. It has taken about 2 1/2 weeks but last night was my first without the drug. I am still on 1200mg of Trileptal a day. I am going to try to deal with the lightheadedness, and anxiety attackes and the restlessness in some other way. I do not think the medical community really understands this disease and all its symptoms and forms. I think this support sight offer some calm in our lives and I am greatful I found it.

Re: Re: Topamax- what kind of side effects do you experience?

Submitted by moggiemomma on Wed, 2006-11-22 - 18:04
I went on Topamax years ago - I found that I suffered from absolutely hideous bleeding of the gums - I'd wake up with a horrible metallic taste and my mouth full of blood. It was a shame, as it worked well otherwise.

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