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Name the BEST pediatric epilepsy dr/hospital - we will go ANYWHERE!

Thu, 09/07/2006 - 19:54
I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont get any better. They talk of surgery, but dont set up the necessary tests - I call them repeatedly since hes not doing better, hes worse - they increase his medicine, it does nothing, they do nothing. They rarely return my calls - in the meantime, my son suffers, his schooling suffers, his social life suffers. PLEASE - can anyone recommend the best dr out there for him? I will go ANYWHERE - plane, train, automobile - my son has right frontal lobe intractable epilepsy with complex partial seizures. he also suffers from post-ictal psychosis on a regular basis. Thank you for your help.

Comments

Re: Name the BEST pediatric epilepsy dr/hospital

Submitted by daisy350 on Tue, 2009-04-14 - 15:16
My 17 year old son has had epilepsy since age 3. He has partical focal seizures that they think come from his right frontal lobe and is also refractory. We live in greater NY area and have been everywhere. Best doctor hands down is Dr. Orrin Devinsky at NYU Medical Center in New York City. They are a Stage 4 Epilepsy Center. Dr. Devinsky has authored books on the subject which cover absolutely everything a patient or caregiver could want to know. He is also the featured doctor in the current Newsweek article about Epilepsy. Go to NYU's website for more info on Dr. Devinsky and NYU's program http://www.med.nyu.edu/ Good luck!

Re: Name the BEST pediatric epilepsy dr/hospital - we will go

Submitted by hockeygoon on Tue, 2009-04-14 - 16:52

Hi Shannon,

I know things can be very difficult. When My son had his first Sezuire I had just fallen asleep with him on the couch and awoke to what I thought was a seziure, but wasn't sure I, or more aless didn't want to beleive it. Abut a week later he had a Grand-Mal and was rushed to the hostpital. His PCP recommended that he go to the only Nueologist in NH that handled children with epilepsy. I demanded and fought my insurance so I could take him to  Childrens Hospital in Boston. The group has been fabulous in the care of my son. He had a total of 3 since the recorded Grand-Mal and has not had one for almost a year. The worked him on a controling medication, and kept in constant contact with me to make sure it was working. I can swear by the medical Attention you will recieve in Boston. My Dad was burned 35% of his body, my brother was almost killed in a car accident and my Mom had Cancer, All were treated at Hospitals associated with Harvard University School of medicine. The link below is the main page to the Neurology Dept. at Children's Hos. Boston

http://www.childrenshospital.org/clinicalservices/Site2132/mainpageS2132P0.html

 

Hi Shannon,

I know things can be very difficult. When My son had his first Sezuire I had just fallen asleep with him on the couch and awoke to what I thought was a seziure, but wasn't sure I, or more aless didn't want to beleive it. Abut a week later he had a Grand-Mal and was rushed to the hostpital. His PCP recommended that he go to the only Nueologist in NH that handled children with epilepsy. I demanded and fought my insurance so I could take him to  Childrens Hospital in Boston. The group has been fabulous in the care of my son. He had a total of 3 since the recorded Grand-Mal and has not had one for almost a year. The worked him on a controling medication, and kept in constant contact with me to make sure it was working. I can swear by the medical Attention you will recieve in Boston. My Dad was burned 35% of his body, my brother was almost killed in a car accident and my Mom had Cancer, All were treated at Hospitals associated with Harvard University School of medicine. The link below is the main page to the Neurology Dept. at Children's Hos. Boston

http://www.childrenshospital.org/clinicalservices/Site2132/mainpageS2132P0.html

 

Dear Alexandra,Good morning

Submitted by Md Humayun Ahmed on Fri, 2018-05-04 - 08:23
Dear Alexandra,Good morning!can you help me for my son . now is 5years.please see details below Iam Bangladeshi.MySon name Md. Rohan AhmedAge.4years 8th MonthsDiagnosis from
  • Dr. Md Mizanur Rahman Pediatric specialist  (Medical officer Rajbari Sodor Hospital Bangladesh)
  • Profersor Dr. Md Mizanur Rahman (Head of Child Development and Neurology)
  •             Bangabandhu sheikh Mujib Medicaluniversity , Bangladesh.
  • Dr Sabera Bilkis (Centre for the Rehabilitation of the Paralysed(CRP) Bangladesh)
  • Dr Maya Mary Thomas & Dr Sangeetha Y (CHRISTIAN MEDICAL COLLEGE vellore India)
  • Dr Phuah Huan Kee ( SBCC baby & Child clinic Neurology centre Singapore under  Mount Elizabeth Hospital)
  • Please see belowDiagnosis :1.Global Developmental Delay Symptomatic Epilepsy2.Autistic Traits3.Symptomatic Epilepsy4.Cerebellar Signs5.Etiology under Evaluation6.Neonatal Risk Factors birth asphyxiaPleasegive me advise how can get an doctor appointment & also treatment cost & VISA process please informas soon as possible.Pleasesee the attached file for your reference.RegardsParents(Md.  Humayun Ahmed)
  • Dr. Md Mizanur Rahman Pediatric specialist  (Medical officer Rajbari Sodor Hospital Bangladesh)
  • Profersor Dr. Md Mizanur Rahman (Head of Child Development and Neurology)
  •             Bangabandhu sheikh Mujib Medicaluniversity , Bangladesh.
  • Dr Sabera Bilkis (Centre for the Rehabilitation of the Paralysed(CRP) Bangladesh)
  • Dr Maya Mary Thomas & Dr Sangeetha Y (CHRISTIAN MEDICAL COLLEGE vellore India)
  • Dr Phuah Huan Kee ( SBCC baby & Child clinic Neurology centre Singapore under  Mount Elizabeth Hospital)
  • Please see belowDiagnosis :1.Global Developmental Delay Symptomatic Epilepsy2.Autistic Traits3.Symptomatic Epilepsy4.Cerebellar Signs5.Etiology under Evaluation6.Neonatal Risk Factors birth asphyxiaPleasegive me advise how can get an doctor appointment & also treatment cost & VISA process please informas soon as possible.Pleasesee the attached file for your reference.RegardsParents(Md.  Humayun Ahmed)

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