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Name the BEST pediatric epilepsy dr/hospital - we will go ANYWHERE!
Thu, 09/07/2006 - 19:54Topic: Living With Epilepsy - Youth
I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont get any better. They talk of surgery, but dont set up the necessary tests - I call them repeatedly since hes not doing better, hes worse - they increase his medicine, it does nothing, they do nothing. They rarely return my calls - in the meantime, my son suffers, his schooling suffers, his social life suffers. PLEASE - can anyone recommend the best dr out there for him? I will go ANYWHERE - plane, train, automobile - my son has right frontal lobe intractable epilepsy with complex partial seizures. he also suffers from post-ictal psychosis on a regular basis. Thank you for your help.
Comments
Re: Name the BEST pediatric epilepsy dr/hospital
Submitted by phylisfjohnson on Mon, 2011-06-20 - 10:38
This is a list of best Pediatric docs as recommended by eforum members, based upon positive personal experiences.
ARIZONA
Dr. Kevin Chapman (Pediatric Epileptologist/Neurologist), Barrows Neurological Institute, Phoenix, AZ
CALIFORNIA
Dr. Nutik, Kaiser-Redwood City, CA
Dr. Joyce Wu, UCLA Mattel Children’s Hospital Division of Pediatric Neurology, CA
CHICAGO
Dr. Douglas Nordli – Pediatric Epileptologist, Children’s Memorial Hospital, Chicago, IL
CONNETICUT
Francine Testa, Yale -New Haven Hospital, New Haven, CT
FLORIDA
Dr. Ronald Davis, Orlando, FL
GEORGIA
Dr. Robert Flamini, Scottish Rite Children’s Hospital, Atlanta, GA
Dr. Sandra Helmers, Emory University, Atlanta, GA
Dr. Roger Hudgins, Scottish Rite Children’s Hospital, GA
ILLINOIS
Dr. Marianne Larsen, Children’s Memorial Hospital, Chicago, IL
INDIANA
Dr. Vicenta Salanova, Riley Hospital for Children, Indianapolis, IN
MARYLAND
Dr. William R Leahy, Greenbelt, MD
Dr. Naidu, Kennedy Krieger Institute, Baltimore, MD
MASSACHUSETTS
Dr. Adjani, UMassachusetts Medical Center, MA
Dr. Blaise Bourgeois, Children’s Hospital, Boston, MA
Dr. Laurie Douglass, Boston, MA
Dr. Frances E. Jensen, Children’s Hospital, Boston, MA
Dr. Joseph Madsen, Children’s Hospital, Boston, MA
Dr. Kenneth Sassower, Massachusetts General Hospital, Boston, MA – Children & Adults — Neurologist/Epileptologist
Dr. Ronald Thibert, Massachusetts General Hospital, Boston, MA
Dr. Elizabeth Thiele, Massachusetts General Hospital, Boston, MA — Pediatric Neurologist and Epileptologist
MICHIGAN
Dr. Harry Chugani, Detroit Children’s Hospital, Detroit, MI
Dr. Eileen McCormick, Michigan Institute for Neurological Disorders (MIND), Farmington Hills, MI
MINNESOTA
Dr. Mary Dunn, St. Paul Children’s, St. Paul, MN
Dr. Frost, Minnesota Epilepsy Center, St. Paul, MN
MISSOURI
Dr. David Callahan, St. Luke’s Hospital, West Chesterfield, MO
Dr. James Rohrbaugh, St Luke’s Hospital, Chesterfield, MO
Dr. William Rosenfeld, Children’s Hospital, St. Louis, MO
Dr. Richard Torkelson, Children’s Mercy, Kansas City, MO
NEW JERSEY
Dr. Steven Kugler, Robert Wood Johnson Hospital, New Brunswick, NJ
Dr. Wollack, Robert Wood Johnson Hospital, New Brunswick, NJ
NEW YORK
Dr. Claudia Chiriboga, Columbia Presbyterian, NY
Dr. Gail Solomon, NYU Comprehensive Epilepsy Center, NY
NORTH CAROLINA
Dr. Darrell V. Lewis, Duke Children’s, NC
OHIO
Dr. Kerry Crone, Children’s Hospital Medical Center, Cincinnati, OH
Dr. Cynthia Foldvary, ClevelandClinic, Cleveland, OH
Dr. David Franz, Children’s Hospital Medical Center, Cincinnati & Mason, OH
Dr. Gupta, Cleveland Clinic, Cleveland, OH
Dr. Roger Hudgins, Akron Children’s Hospital, Akron, OH
PENNSYLVANIA
Dr. Khurana, St. Christopher’s Hospital, Philadelphia, PA
TENNESSEE
Dr. Paul Knowles, T.C. Thompson’s Children’s Hospital, Chattanooga, TN
Dr. Barbara Olsen, Pediatric Neurology Associates, Nashville, TN
Dr. James Wheless, LeBonheur Hospital, Memphis, TN
TEXAS
Dr. Imad T. Jarjour, Houston, TX
Dr. Anthony Riela, Texas Child Neurology, Plano, TX
Dr. Angus Wilfong, Texas Children’s Hospital, Houston, TX
VIRGINIA
Dr. Pearl, Fairfax, Virginia
WASHINGTON, D.C.
Dr. Pearl, Children’s National Medical Center, Washington, D.C.
WISCONSIN
Dr. Kurt Hecox, Children’s Hospital of Wisconsin, Milwaukee, WI
Dr. S. Anne Joseph, Children’s Hospital of Wisconsin, Milwaukee, WI
Dr. Mary Zupanc, Children’s Hospital of Wisconsin, Milwaukee, WI
Hope this helps.
Phylis Feiner Johnson
www.epilepsytalk.com
Re: Name the BEST pediatric epilepsy dr/hospital - we will go AN
Submitted by Jersey on Mon, 2009-04-13 - 11:36
My pediatric neurologist was Daniel Alder, in New Jersey... I don't know if he's taking any new clients though.
Re: Name the BEST pediatric epilepsy dr/hospital - anywhere!
Submitted by cassidy3 on Sat, 2009-12-26 - 12:36
I have been trying to get my daughter into the Pediatric Mayo clinic in Rochester. I have heard that it is the best. I faxed over my info, but so far nothing back. We too will go anywhere and do anything! I have not switched Neuro's yet, but will probably have to. I am affraid to switch and start all over again, but we are getting nowhere. My daughter has a seizure every 15 minutes, when awake and asleep. I thought that the Zonisamide was working because we did not have any big seizures, but the test show that they are still there. Currently she is having more fruquent absence and the higher the dosage the more we see. You can contact me directly at mlbc3@cox.net. Good luck,
Laure. : )
I have been trying to get my daughter into the Pediatric Mayo clinic in Rochester. I have heard that it is the best. I faxed over my info, but so far nothing back. We too will go anywhere and do anything! I have not switched Neuro's yet, but will probably have to. I am affraid to switch and start all over again, but we are getting nowhere. My daughter has a seizure every 15 minutes, when awake and asleep. I thought that the Zonisamide was working because we did not have any big seizures, but the test show that they are still there. Currently she is having more fruquent absence and the higher the dosage the more we see. You can contact me directly at mlbc3@cox.net. Good luck,
Laure. : )