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Name the BEST pediatric epilepsy dr/hospital - we will go ANYWHERE!
Thu, 09/07/2006 - 19:54Topic: Living With Epilepsy - Youth
I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont get any better. They talk of surgery, but dont set up the necessary tests - I call them repeatedly since hes not doing better, hes worse - they increase his medicine, it does nothing, they do nothing. They rarely return my calls - in the meantime, my son suffers, his schooling suffers, his social life suffers. PLEASE - can anyone recommend the best dr out there for him? I will go ANYWHERE - plane, train, automobile - my son has right frontal lobe intractable epilepsy with complex partial seizures. he also suffers from post-ictal psychosis on a regular basis. Thank you for your help.
Comments
University of Chicago
Submitted by Lindax on Mon, 2009-07-13 - 03:33
University of Chicago
Re: Name the BEST pediatric epilepsy dr/hospital -
Submitted by Stanfordash on Sun, 2012-02-26 - 18:56
TO ANYONE WHO COMES ACROSS THIS DISCUSSION:
The Cleveland Clinic has the best pediatric epilepsy program in my experience. We went to several other top hospitals and no one could diagnose my son or stop his near-constant seizures. The doctors at the Cleveland Clinic discovered a subtle malformation in his brain, performed surgery to remove it, and now my son is seizure free and developing well. The expertise and experience they have there is phenomenal, and I find the doctors all personable and caring. We love the Cleveland Clinic!
Re: Name the BEST
Submitted by wyboemail on Mon, 2009-04-13 - 14:07
Shannon, Did you ever find a Dr? Let me know who you found. curtis.wybourn@us.qbe.com
Curt
Shannon, Did you ever find a Dr? Let me know who you found. curtis.wybourn@us.qbe.com
Curt