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Stress and seizures and marriage issues
Thu, 03/01/2007 - 19:55I am 28 years old and I have been married for about 2 months. My husband does not know much about epilepsy. My seizures are mostly triggered by lack of sleep and stress. He just believes I say that as an excuse. He does not know much about epilepsy and does not think it is serious. I am sleepy through most of my day and if I do not get a nap I begin having aura's. We have alot of marriage problems and money stress. How do I help him understand any of this? I also have Chronic Fatigue Syndrome and Fibromyalgia. None of these he understands either he just thinks I am tired and lazy. I also have an autistic son which is a source of huge stress for me, but he leaves alot of the responsibilty of him to me no matter how I am feeling.
Please help me.
Tera
Comments
Re: Re: Stress and seizures and marriage issues
Submitted by mommy2kyra on Fri, 2007-03-02 - 11:58
Hi Tamara,
Your post caught my eye by the words your doctor spoke. Your doctor wants you to go the ER every time you have a seizure? What kind of seizures are you having?
Most seizures don't require immediate doctor's visits--I can only imagine how busy the offices would be if we *all* went for every seizure! LOL If you're going status, get medical help of course. In most cases of seizures, you can just contact the doctor's office (at your convenience) and let them know what's happening.
Of course, take your medication. Get you blood tests. See your doc regularly. I'd recommend seeing a different doc if yours is Mr. Paranoid though...'cause his negativity sure doesn't help you deal with the E.
Best of luck, take care!
Heather
*refractory seizure surgery on left temporal lobe 03/06*
Re: Re: Stress and seizures and marriage issues
Submitted by JimmyTera2006 on Fri, 2007-03-02 - 15:22
Tamara, I am in Southern California. I am very new this I was only diagnosed 2 months ago. I told him last night that he is going to my next dr's appt with me so my dr can explain it to him. Oh and a friend of his at work said I could "grow" out of my epilepsy. And I tried to explain to him that if I had it as a child that might have happened. But now that I have been diagnosed as an adult that in unlikely. Thank you so much for your response!
Tera
Re: Stress and seizures and marriage issues
Submitted by Hoddinott on Fri, 2007-03-02 - 11:00
Hi Tera, I was under almost the same situation. I was only married a month ago. But we have a great marriage but he does not understand my seizures or epilepsy. In fact he is the one that talked me into not taking my medication cause he didnt think they helped. It wasn't until two weeks ago that he went to my doctors appointment with me. I never told my doctor that how my husband felt about it or didn't know about it and no word of a lie my doctor said "Tamara if you want to die, then dont go to the hosp next time you have a seizure!" It was great cause it scared my husband and now he's totally understanding infact this is how I found this forum he showed me. So maybe get him to take you to one of your doctor appointments. I'm in Canada so there is alot of resources and groups here. Where are you from?