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Seizures During Sleep

Wed, 02/11/2009 - 22:16

 

Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on getting them under control by giving up these things rather than taking my medication, I find the medication Valpro has some bad side effects.

I think my last seizure  was a big one becauseI have been a scattered mess since then, I've slept for two days straight now and I have yet to leave the house. I can't think straight so if this doesn't make any sense I hope u understand why. My whole body is aching and my memory is slowly returning.

Anyways I'm almost 25 and I was diagnosed about 2 1/2 years ago.. does anybody else experience sleep related seizures?.. I truly believe if I can get enough sleep I will  get my epiliepsy under control.

Thanks for any of your comments.

Comments

Re: Seizures During Sleep

Submitted by nurseweeks on Tue, 2009-10-27 - 15:53

I was reading your reply about nocturnal seizures and your case sounds exactly like mine except my doctor is trying his best to do what needs to be done. I still don't know why I have began having seizures at 25 now 26 years old. I have no family history, no drinking or drug addiction nor have I ever had any type of head trauma? I have been thru a lot of testing. Have you had a MRI done? Please let me hear back from you. Jessica

I was reading your reply about nocturnal seizures and your case sounds exactly like mine except my doctor is trying his best to do what needs to be done. I still don't know why I have began having seizures at 25 now 26 years old. I have no family history, no drinking or drug addiction nor have I ever had any type of head trauma? I have been thru a lot of testing. Have you had a MRI done? Please let me hear back from you. Jessica

Re: Seizures During Sleep

Submitted by gogirl on Tue, 2009-11-03 - 08:22

Stepha,

 I sympathize with you. I had my first seizure at your age, too.  You will probably lose your license, but depending on the state you are in, it'll only be for a year (if you're seizure free) up to 3 years. When it happened to me, I had lucky moved out of one state into another and now my new home is screwing around with me (and I've been seizure free for 5 years!)

Anyway, have you spoken to MD about surgery? It was successful for me. Of course I didn't like being bald, but what woman does? Please let me know, I'm writing a story about women and epilepsy and the surgery and in particular women in the their 20s and 30s.

Peace,

Julie

Stepha,

 I sympathize with you. I had my first seizure at your age, too.  You will probably lose your license, but depending on the state you are in, it'll only be for a year (if you're seizure free) up to 3 years. When it happened to me, I had lucky moved out of one state into another and now my new home is screwing around with me (and I've been seizure free for 5 years!)

Anyway, have you spoken to MD about surgery? It was successful for me. Of course I didn't like being bald, but what woman does? Please let me know, I'm writing a story about women and epilepsy and the surgery and in particular women in the their 20s and 30s.

Peace,

Julie

Re: Seizures During Sleep

Submitted by woolyjulie72 on Sun, 2009-10-18 - 18:59
 I usually waken up & my face is all twisted & thats how i know i have had a seizure during the nite , or else i have bitten my mouth , i never used to get seizures at nite alot then a year or so ago i started taking them regular and now i am taking them a few times a week and when i waken i am shattered even if i have had 10-11 hours sleep i am still shattered what has upset me alot is that i feel my neuro is not taking me seriously even though i have uncontrollable epilepsy with the amount of nite seizures i have been taking it is tireing the following day out of me i feel lost but as i say life goes on and chin up xxx julie xxx

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