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Seizures During Sleep
Wed, 02/11/2009 - 22:16
Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on getting them under control by giving up these things rather than taking my medication, I find the medication Valpro has some bad side effects.
I think my last seizure was a big one becauseI have been a scattered mess since then, I've slept for two days straight now and I have yet to leave the house. I can't think straight so if this doesn't make any sense I hope u understand why. My whole body is aching and my memory is slowly returning.
Anyways I'm almost 25 and I was diagnosed about 2 1/2 years ago.. does anybody else experience sleep related seizures?.. I truly believe if I can get enough sleep I will get my epiliepsy under control.
Thanks for any of your comments.
Comments
Re: Seizures During Sleep
Submitted by gogirl on Tue, 2009-11-03 - 08:28
Rob,
I was on Dilantin once (along with Depakote). I ended up checking myself in to a Psychiatric Hospital one weekend because the stuff was making me suicidal. I think the safest thing I was ever one was Tegretol XR, bad for the appetite and weight, but if you're a woman, you aren't going to complain. Also, if you take Dilantin, take Vitamin D, the stuff is bad for the bones.
Peace,
Julie
Rob,
I was on Dilantin once (along with Depakote). I ended up checking myself in to a Psychiatric Hospital one weekend because the stuff was making me suicidal. I think the safest thing I was ever one was Tegretol XR, bad for the appetite and weight, but if you're a woman, you aren't going to complain. Also, if you take Dilantin, take Vitamin D, the stuff is bad for the bones.
Peace,
Julie
Re: Seizures During Sleep
Submitted by Stephanie Cerra on Sun, 2009-10-18 - 12:42
Hi, my name is Stephanie and I'm brand new to this forum. I had my first tonic-clonic seizure a year ago, and have had two more since--most recently, this morning. Bit my tongue and am sore all over, and spacey, but at least I've never wet the bed!
All three seizures occurred in the early morning some hours before I'd usually wake up. I'm wondering if there's a stress connection, because this last year has been rough--I've been unemployed for 9 months, just had an unsuccessful job interview, and I've been sleeping poorly the last week. I don't drink or smoke and there's no history of epilepsy in my family. Back to the doctor for me.
I'm worried about losing my driver's license. Maybe my doc will make allowances for the fact that I only seem to have them while sleeping.
Hi, my name is Stephanie and I'm brand new to this forum. I had my first tonic-clonic seizure a year ago, and have had two more since--most recently, this morning. Bit my tongue and am sore all over, and spacey, but at least I've never wet the bed!
All three seizures occurred in the early morning some hours before I'd usually wake up. I'm wondering if there's a stress connection, because this last year has been rough--I've been unemployed for 9 months, just had an unsuccessful job interview, and I've been sleeping poorly the last week. I don't drink or smoke and there's no history of epilepsy in my family. Back to the doctor for me.
I'm worried about losing my driver's license. Maybe my doc will make allowances for the fact that I only seem to have them while sleeping.
Re: Seizures During Sleep
Submitted by ramblin robert on Sat, 2009-10-17 - 15:04
Hi, I'm Rob. New here. I'm 47, and have had nocturnal seizures since I was 18. I haven't had one for a few years now, but wouldn't prescribe my form of seizure prevention for anyone. I haven't seen a doctor for about 8 years and am living in Mexico (I'm from Chicago). I'm taking 1 gram (1000 mg) of carbamazapine every night befor I go to bed.
My seizures come on at about 5/5:30 in the morning. I usually go to bed around 10:30/11 pm. I do have one comment about your medication though. Ask your doctor (or research it yourself) about Dilantin and it's history of messing up people's mouths. I had to have very painful surgery years ago, which did not really fix the problem. The problem is that Dilantin makes your gums very puffy. It created 11 mm deep pockets between my gums and teeth (they should be 3). Food got trapped and rotted a lot of the bone. My gums had to surgically cut front and back, top and bottom, food removed, and bone replaced. 62 stitches!!! Veryvery painful. Check into it befor it's too late. I was on Dilantin for about 10 years.
There is so much to report/discuss, i couldn't possibly do it all right here, look for more from me in the future. I just wanted to warn you about Dilantin.
Hi, I'm Rob. New here. I'm 47, and have had nocturnal seizures since I was 18. I haven't had one for a few years now, but wouldn't prescribe my form of seizure prevention for anyone. I haven't seen a doctor for about 8 years and am living in Mexico (I'm from Chicago). I'm taking 1 gram (1000 mg) of carbamazapine every night befor I go to bed.
My seizures come on at about 5/5:30 in the morning. I usually go to bed around 10:30/11 pm. I do have one comment about your medication though. Ask your doctor (or research it yourself) about Dilantin and it's history of messing up people's mouths. I had to have very painful surgery years ago, which did not really fix the problem. The problem is that Dilantin makes your gums very puffy. It created 11 mm deep pockets between my gums and teeth (they should be 3). Food got trapped and rotted a lot of the bone. My gums had to surgically cut front and back, top and bottom, food removed, and bone replaced. 62 stitches!!! Veryvery painful. Check into it befor it's too late. I was on Dilantin for about 10 years.
There is so much to report/discuss, i couldn't possibly do it all right here, look for more from me in the future. I just wanted to warn you about Dilantin.