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Screaming during a seizure???
Wed, 01/12/2005 - 16:02Comments
Re: Screaming
Submitted by jenikaye on Tue, 2013-01-15 - 14:33
Thank you so much for posting this! My lil one was diagnosed with a cortical dysplasia that causes her siezures and just like your son her siezures are always during sleep, useally 30 minutes after falling asleep. Today was the first episode ever where she was totally awake (for at least an hour) & playing before having one. She just randomly started screaming, kinda like a night terror, and looked dazed and scared. She stopped screming after about 30 sec but was not able to focus or articulate for 2 additional minutes. Once she started to come out of it she stated she was sleepy & hungry, both her norms when she comes out of a seizure. Her normal seizures are very unlike this, normally she loses ability to speak/move, vomits, troubles breathing due to excess saliva, sometimes eyes will go to the right with a slight chewlike movement of the mouth with the seizure lasting last 15-30 minutes (rare for seizures which is why we administer Diazepam at the onset of one). With the exception of today's episode, Keppra has really kept the seizures at bay and most likely just need an adjustment due to her recent growth spurt. Hope your son is doing well, and thank you again for posting, helped calm my nerves knowing that this epsiode is not all that rare.
Jen
Thank you so much for posting this! My lil one was diagnosed with a cortical dysplasia that causes her siezures and just like your son her siezures are always during sleep, useally 30 minutes after falling asleep. Today was the first episode ever where she was totally awake (for at least an hour) & playing before having one. She just randomly started screaming, kinda like a night terror, and looked dazed and scared. She stopped screming after about 30 sec but was not able to focus or articulate for 2 additional minutes. Once she started to come out of it she stated she was sleepy & hungry, both her norms when she comes out of a seizure. Her normal seizures are very unlike this, normally she loses ability to speak/move, vomits, troubles breathing due to excess saliva, sometimes eyes will go to the right with a slight chewlike movement of the mouth with the seizure lasting last 15-30 minutes (rare for seizures which is why we administer Diazepam at the onset of one). With the exception of today's episode, Keppra has really kept the seizures at bay and most likely just need an adjustment due to her recent growth spurt. Hope your son is doing well, and thank you again for posting, helped calm my nerves knowing that this epsiode is not all that rare.
Jen
Re: Screaming
Submitted by juliemac on Sun, 2011-09-11 - 13:31
my son has complex partials and does the same thing, starts off with a blood curtling scream, and then will sometimes his head and right arm go to the right with eye deviation also to the right. I have often wondered about testing his glucose levels as well as dehydration as I've heard there may be a connection to nocuturnal seizures. His seizures are almost always at night, either an hour after falling asleep or just before waking. He's had left temp. lobe surgery (3 yrs ago) which reduced the number of seizures but they are starting to increase. Sleep dep., stress and barometric pressure seem to be triggers for him. It is somewhat "comforting" to know he isn't the only one who has this fearful scream, it is very distressing and I just hate to see him going through this, although he doesn't remember it, he does sometimes feel scared and/or gets that "rush" sensation throughout the day and feels off.
Have you since been able to get your sons seizures controlled with medication? My son is on tegretol and lamictal.
thanks,
my son has complex partials and does the same thing, starts off with a blood curtling scream, and then will sometimes his head and right arm go to the right with eye deviation also to the right. I have often wondered about testing his glucose levels as well as dehydration as I've heard there may be a connection to nocuturnal seizures. His seizures are almost always at night, either an hour after falling asleep or just before waking. He's had left temp. lobe surgery (3 yrs ago) which reduced the number of seizures but they are starting to increase. Sleep dep., stress and barometric pressure seem to be triggers for him. It is somewhat "comforting" to know he isn't the only one who has this fearful scream, it is very distressing and I just hate to see him going through this, although he doesn't remember it, he does sometimes feel scared and/or gets that "rush" sensation throughout the day and feels off.
Have you since been able to get your sons seizures controlled with medication? My son is on tegretol and lamictal.
thanks,