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Screaming during a seizure???
Wed, 01/12/2005 - 16:02Comments
Re: Screaming
Submitted by bells82 on Mon, 2010-08-30 - 10:20
Hi,
I did this one time at the ER during my seizure and I even scared myself. I'm sure I scared everyone there. I'm totally aware during my seizures. I have never screamed that loud in my entire life and I'm 46 years old. It went on for what seemed liked ages. So I'm so happy to hear I'm not the only one that did this :)
Hi,
I did this one time at the ER during my seizure and I even scared myself. I'm sure I scared everyone there. I'm totally aware during my seizures. I have never screamed that loud in my entire life and I'm 46 years old. It went on for what seemed liked ages. So I'm so happy to hear I'm not the only one that did this :)
Re: Screaming
Submitted by jajamom on Wed, 2008-07-09 - 13:58
Thanks for the note. We are seeing a nuerologist on Monday. What kind of testing allowed for a diagnosis? We had an EEG a few months ago and it was normal and then our ped. ruled out seizures.
Wondering if you dont mind elaborating a littlemore about your infancy grand mal seizures? Our son seems to wake up in a high pitched blood blood curdeling screetch, while stiff and eyes rolled back in his head. This lasts a few minutes and then he cries for about 30 -45 minutes before falling back to sleep.
Do you notice if you have any triggers? Dehydration? Overstimulation? Low glucose??
Just trying to sort all of this out and I really appreciate any insight - since you have been living it for so long.
Thanks.
Thanks for the note. We are seeing a nuerologist on Monday. What kind of testing allowed for a diagnosis? We had an EEG a few months ago and it was normal and then our ped. ruled out seizures.
Wondering if you dont mind elaborating a littlemore about your infancy grand mal seizures? Our son seems to wake up in a high pitched blood blood curdeling screetch, while stiff and eyes rolled back in his head. This lasts a few minutes and then he cries for about 30 -45 minutes before falling back to sleep.
Do you notice if you have any triggers? Dehydration? Overstimulation? Low glucose??
Just trying to sort all of this out and I really appreciate any insight - since you have been living it for so long.
Thanks.
Re: Screaming
Submitted by 4mykids on Wed, 2008-07-16 - 14:46
My son's trigger is an overload of chemicals. We are currently getting carpet out of our home and eating organic, as well as eliminating a lot of plastic to store foods. You could also seal your carpets with a product called AFM safecoat ( I think that is it), and that will help a lot too.
Maybe take a look at your home environment. Carpet is horribly toxic, as well as some furniture and bedding. I never knew any of this before my son's problems, and it has made a world of difference. Carpet fumes go into the air more on hot and humid days, and if the house has been closed up, they accumulate. Carpet in a basement is sure to bring a mold problem, which used to almost ALWAYS bring on a seizure for my son. Now our basement is clean and dry, so he doesn't have a problem down there.
I apologize if this sounds wacky, but I thought I would "put it out there" so one child would suffer less. Changing the environment for your child will do wonders.
God bless,
My son's trigger is an overload of chemicals. We are currently getting carpet out of our home and eating organic, as well as eliminating a lot of plastic to store foods. You could also seal your carpets with a product called AFM safecoat ( I think that is it), and that will help a lot too.
Maybe take a look at your home environment. Carpet is horribly toxic, as well as some furniture and bedding. I never knew any of this before my son's problems, and it has made a world of difference. Carpet fumes go into the air more on hot and humid days, and if the house has been closed up, they accumulate. Carpet in a basement is sure to bring a mold problem, which used to almost ALWAYS bring on a seizure for my son. Now our basement is clean and dry, so he doesn't have a problem down there.
I apologize if this sounds wacky, but I thought I would "put it out there" so one child would suffer less. Changing the environment for your child will do wonders.
God bless,