Screaming during a seizure???

Mandy, mother of little

Submitted by mandycrom on Sun, 2007-11-25 - 03:30

Mandy, mother of little Emma My daughter Emma is 3 and a half and has complex partial epilepsy. She is on two drugs but her seizures are still very bad. Her seizures display as screaming! She only has them during sleep. She will suddenly start to scream and scream like she is being murdered and trash around and make cycling movements with her feet and sometimes hands. She often screams out MOMMY MOMMY MOMMY for a while and all the while I am with her saying, mommy is here, she has no idea of course. Then she seems to be partially aware sometimes and seems to look in my direction and scream GO AWAY GO AWAY GO AWAY, over and over with her arms outstretched and pupils dilated. These episodes can last from anything between 10 minutes and as long as 45 minutes on a bad night. She sometimes has 3 a night and has had up to 7 a night before she was diagnosed and before drugs. On drugs she has 3 at the most per night. We have not been able to manage it yet as she has only been on drugs for 6 months now. We are so desperate to get it managed as we feel so sorry for her. When she calms down she has no idea at all what has happened. She starts to yawn a lot when she is coming round and then the screaming stops. she can speak in a slurred way and when we ask her if she was crying she always says no and looks at us as if we are crazy.Does anyone out there have a child as young as mine with a similar thing? Any advice for me as I'm still so new at all this?